FARE (Food Allergy Research & Education) is the largest organization serving as the voice of the 32 million Americans, including 5.6 million children under 18, living with potentially life-threatening food allergies. Its mission is to improve the quality of life and the health of individuals with food allergies, and to fund research that drives innovation in the hope of new therapies and treatments. 

FARE has a long track record of successfully engaging in advocacy to improve the quality of life for those living with food allergies.  As a result of its work, 49 states have enacted laws that either require schools to permit a student to self-carry an Epinephrine auto-injector or to stock Epinephrine auto-injectors. It has also achieved success in enacting statutes in Illinois, Massachusetts, Rhode Island, Michigan, and Virginia, as well as a few municipalities, to require some form of training so restaurant workers are more aware of food allergy risks.  FARE also has an active federal advocacy agenda. 

FARE has made a major commitment to growing and investing significantly in its advocacy capabilities.  To this end, it is seeking an individual to become either Sr. Director or Vice President of Federal Government Relations, depending on experience, to build and assist in its federal government relations programs.  This is a rare opportunity for someone to come in on the ground floor and assist in building a first-in-class advocacy program.  The position will be a direct report to the Senior Vice President of External Affairs.  In addition, this individual will also work closely with Medical Advisors, Chief of Research and Innovation, and other internal stakeholders on regulatory matters.  In this role, the person will be responsible for the development and implementation of FARE’s federal government affairs initiatives aimed at actions to significantly influence national leaders in the public and private sectors to implement policies and programs that support the mission and goals of FARE.

Essential Duties and Responsibilities

  • Establish, manage and oversee FARE’s federal government relations, including strategy and direct lobbying, working in collaboration with FARE staff who manage grassroots advocacy, regulatory policies, and general health policy advocacy. 
  • Analyze federal issues relevant to FARE, develop and secure internal and external support for FARE’s positions on key issues, conduct necessary advocacy research, draft and/or create all legislative advocacy materials, including fact sheets, leave behinds, testimony, and regulatory filings.
  • Directly develop, nurture, and sustain relationships with key elected officials, relevant government agencies such as HHS, NIH, NIAID and FDA, other food allergy, health, and related organizations, and other stakeholders that can influence FARE’s agenda.
  • Engage and work with outside consultants retained by FARE for government affairs work.
  • Strategically develop and lead federal issue campaigns and create and/or join coalitions that can advance FARE’s policy priorities.
  • Manage the government relations team responsible for federal legislative and regulatory efforts.
  • Work with FARE’s grassroots and grasstops programs to ensure the food allergy community is fully engaged in supporting FARE’s goals.
  • Work with FARE’s research and scientific experts to identify key regulatory and health policy issues relevant to FARE. 
  • Inform and advise FARE’s executive staff leadership and its Board on key legislative objectives and strategies.
  • Represent FARE at coalition meetings and other government affairs events where FARE’s presence is required to support advocacy goals.

Required Knowledge, Skills and Abilities

  • Ability to think strategically and critically evaluate risks to regulatory activities
  • Ability to work strategically within a complex, business critical and high-profile development program
  • Successful contribution to a major regulatory approval at regional level
  • Manage regulatory projects planning, execution, and monitor & control efforts, report on progress, manage project closing as required
  • A scientific and clinical understanding of the regulatory sciences
  • Must demonstrate competencies of: strategic thinking, strategic influencing, innovation, initiative, leadership and excellent oral and written communication skills

Education and Experience

  • Bachelor’s degree from an accredited college or university or equivalent combination of education, training, and work experience;  graduate degree related field a plus
  • Minimum of 10 plus years of relevant experience (preferably in agency, governmental or organization setting).
  • Compensation for the position is commensurate with experience, and an outstanding benefits plan is included.