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Advocacy

Agenda – Courage at Congress 2022

May 16-19, 2022

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Agenda

*Please note, agenda is subject to change. 
**All times are Eastern Time and Estimates.

 

Day 1 - Monday, May 16, 2022

 

11:00 – 11:05 a.m.

  • FARE CEO Welcome: Brief comments by Dr. Sung Poblete kicking-off the third annual Courage at Congress event.

11:06 – 11:40 a.m. 

  • Going Beyond Congress – FARE’s 2022 Advocacy Initiatives to Make Life Better and Safer for the Food Allergy Community: This panel features Dr. Bruce Roberts, Chief Research Strategy and Innovation Officer, chatting with Kristi Grim, Senior Director of Programs and Tiffany Leon, RD, Sr. Manager of Training and Professional Programs, about our advocacy work involving FARECheck and WIC as well as a preview of the upcoming Summit.

11:40 a.m. – 12:10 p.m. 

  • The FDA, FASTER Act and More: FARE’s VP of Regulatory Affairs, Robert Earl, will have a conversation with Dr. Susan T. Mayne, Director of Center for Food Safety and Applied Nutrition (CSFAN) about progress the FDA is making to satisfy labeling requirements of the FASTER Act, determining future allergens to be labeled, and additional topics.

12:10 – 12:40 p.m.

  • Lunch Break

12:40 – 2:15 p.m.

  • Discussing our 2022 Government Affairs Priorities
    • 2022 Preview: Jon Hoffman, Senior Director of Government Affairs, describes our legislative priorities and why they matter.
    • Building support for the Drug Shortages Shelf-Life Extension Act: Jason Linde interviews Erin Malawer, CEO of Allergy Health, about a bill that would allow the FDA to extend the expiration date on epinephrine auto-injectors.
    • The Appropriations Process and Why It is Important to Our Community: Rachel Jenkins, Rep. Tim Ryan’s (D-OH- 13) Legislative Director, shares with our audience what is an appropriation and why they are a critical part of our advocacy initiatives.
    • Growing the Congressional Food Allergy Research Caucus and having effective meetings with staff: Sean McCabe, Legislative Assistant, Rep. Patrick McHenry (R-NC-10) chats with Jason Linde about the importance of the Caucus and tips for having effective staff meetings.
    • Child Nutrition Reauthorization (CNR) Act – What is it and why does it matter to our community? Join FARE’s VP of Regulatory Affairs, Robert Earl for a conversation featuring two CNR experts – Geri Henchy, Director Nutrition Policy and Early Childhood Programs at the Food Research and Action Center (FRAC) and Brian Dittmeier, Senior Director, Public Policy, National WIC Association (NWA).
    • Live Question and Answer Session with Jon Hoffman, Robert Earl, and Jason Linde about FARE’s Priorities

2:15 – 2:30 p.m.

  • Break

2:30 – 4:00 p.m.

  • Community Access Programs and Neighborhood Advocacy: This panel focuses primarily on FARE’s efforts to improve the lives of food allergy families living in under- resourced communities and touches on some of our community-based efforts and features Anita Roach, VP of Community Programs and Education as well as individuals partnering with FARE on efforts in Newark, NJ; Washington, DC; and Chicago, IL.

4:00 – 4:15 p.m.

  • Break

4:15 – 5:00 p.m. 

  • Using our lobbying platform: This presentation features Jon Hoffman and Lincoln Clapper of Prime Advocacy walking participants through the Prime Advocacy platform where advocates will lobby staff and members of Congress on Wednesday, May 18 and Thursday, May 19.

5:00 – 5:30 p.m. 

  • The Survey Says – FARE’s Research Focus: Jason Linde has a conversation with Sara Klein, Director of Market Research, as she presents an overview of FARE’s consumer research, relevant findings, and a preview of future projects.

5:30 – 5:45 p.m. 

  • Lobbying Meetings Gone Bad: Behaviors and things to avoid during your lobbying meetings.

5:45 – 8:00 p.m.

  • Break

8:00 – 9:30 p.m. 

  • Advocacy Spotlight – Making a Difference in High School and College: A panel conversation featuring a handful of young, up and coming advocates who are making waves in our community moderated by Elise Buellesbach, Intern, Government Affairs.

 

Day 2 - Tuesday, May 17, 2022

 

10:30 – 11:00 a.m.

  • The Oopsie Meeting – Here’s Hoping This Doesn’t Happen to You and What to Do When It Does: Five staff and member of Congress scenarios we hope you don’t encounter and what happens if you do.

11:00 a.m. – 12:29 p.m.

  • The Federal Government and FARE’s Treatment Agenda for 2022 and Beyond featuring Dr. Alkis Togias, Dr. Tom Casale, and Dr. Anna Nowak-Wegrzyn: Individual presentations and then a live panel conversation discussing the latest on federal government research and encouraging treatment initiatives. Due to a scheduling conflict, Dr. Togias will be unable to participate in the live question and answer segment.

12:30 p.m. – 1:00 p.m.

  • A View from the States – A Panel Conversation with Advocates Focused on Changing State Laws to Improve Life for Our Community: Jon Hoffman moderates a conversation featuring Stacey Saiontz, Nicole Arpiarian, and Priscilla Hernandez about their efforts in New York, Massachusetts, and California, respectively.

1:00 – 1:30 p.m.

  • Lunch Break

1:30 – 2:30 p.m. 

  • This is How We Do It – A Last Minute Primer on Having an Effective Lobbying Meeting: Jon Hoffman and Jason Linde role-play a typical meeting with an advocate and a congressional staffer discussing FARE’s legislative priorities for 2022.

2:30 – 3:45 p.m. 

  • On the Horizon, Therapies and Treatments (Hopefully) Coming Soon: A panel conversation hosted by Dr. Bruce Roberts featuring FARE Clinical Network investigators, Dr. Katherine Angostou and Dr. Edwin Kim.

3:45 – 4:00 p.m.

  • Break

4:00 – 5:15 p.m.

  • Food Allergy Advocacy Goes Global: What makes the world go ‘round? One thing is global attention and coordination around food allergy advocacy. Join FARE, Food Allergy Canada, and German Allergy & Asthma Association representatives to discuss food allergy advocacy priorities and challenges at the national levels and via Codex Alimentarius (the global food code). The three organizations represent the leadership of the forming sub-committee on food labeling of the European Academy of Allergy and Clinical Immunology’s Patient Organization Committee.

5:30 – 8:00 p.m.

  • The Congressional Food Allergy Research Caucus Kick-Off Reception: FARE holds its first in-person event in Washington, D.C. in more than two years honoring members and staff of the Congressional Food Allergy Research Caucus as well as food allergy advocates. If you are interested in attending or learning more, please email Elise Buellesbach at EBuellesbach@foodallergy.org

 

Day 3 - Wednesday, May 18, 2022

 

10:00 a.m. – 5:00 p.m.

  • Online Lobbying: Attendees will meet with their members of Congress and congressional staff using the Prime Advocacy platform to discuss FARE's legislative priorities.

6:45 p.m. – 7:45 p.m.

  • Join the Amazing Alan Hudson for an Online Magic Show: From “Britain’s Got Talent,” we welcome Alan Hudson, the “Virtual Magician,” for a not-to-believed live online magic show. The Zoom link for this show will be provided to all registrants on Monday, May 16.

 

Day 4 - Thursday, May 19, 2022

 

10:00 a.m. – 5:00 p.m.

  • Online Lobbying: Attendees will meet with their members of Congress and congressional staff using the Prime Advocacy platform to discuss FARE's legislative priorities.

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