Your Donations at Work
FARE is the leading national organization working on behalf of the 15 million Americans who have food allergies, including all those at risk for life-threatening anaphylaxis. We work hard to ensure that every dollar raised brings us closer to improving the quality of life and the health of individuals with food allergies, and providing them hope through the promise of new treatments.
Your support makes great things happen!
When you donate to FARE, you’re investing in programs and resources that change – and save – lives. In 2016, your donations helped us make great progress in each area of our mission. Keep reading to learn more about the impact your donations make every day!
Your Donations at Work in 2016
LIFE – FARE’s education, advocacy and awareness initiatives support the ability of individuals with food allergies to live safe, productive lives with the respect of others. In 2016, FARE:
- Broadened the reach of the FARE College and Food Allergy Program, more than doubling the number of colleges that are piloting our national food allergy guidelines. There are now over 30 colleges participating in the program, which helps keep college students safe and included on college campuses. FARE is providing guidelines, support and free training to pilot schools in order to provide students with food allergies a safer college experience.
- Supported 53 local education and awareness initiatives with funding from our Community Outreach Program. FARE's Community Outreach Awards program provides funding and in-kind support to local food allergy leaders to put on programs - such as conferences, school presentations and other events - to improve understanding of food allergies within their local communities.
- Launched "Keeping Students Safe and Included," part of the FARE Education Network and a new training resource for educators, which gives schools clear, actionable information to help school staff support students with food allergies. These materials are part of FARE's ongoing delivery of community education initiatives and library of extensive resources.
- Reached millions of people worldwide through FARE’s Halloween awareness campaign, The Teal Pumpkin Project. This year's campaign, which helps create a happier and safer Halloween for all, was an even bigger hit, with increased participation in all 50 states bolstered by the availability of new campaign merchandise in national retail stores, and generating media coverage in hundreds of outlets including TODAY Parents, Huffington Post, USA Today, CNN.com and Mashable.
- Hosted our third FARE National Food Allergy Conference in Orlando and our 11th Annual FARE Teen Summit in Milwaukee, each of which was attended by hundreds of families who gained insights and tools to live well with food allergies. This was the first time FARE held a Teen Summit outside the Washington, DC area, and we were thrilled to bring this popular, life-changing educational event to new families who joined us in the Midwest.
- Continued its education outreach efforts in a number of ways, including hosting free monthly educational webinars that can be accessed 24/7, speaking at national conferences and providing daily services to individuals who call and write to our staff members about issues or questions they have regarding food allergies.
- Organized state advocacy days in New York, Illinois, California and Ohio to raise awareness about food allergies and the importance of emergency preparedness. All four states subsequently passed laws allowing entities such as stadiums, theme parks and day care centers to stock epinephrine.
- Worked in partnership with advocates across the country to expand the availability of stock epinephrine. In 2016, 10 states passed laws allowing entities such as stadiums, theme parks and day care centers to stock epinephrine. Laws expanding stock epinephrine access in schools were passed by four states and the District of Columbia.
- Established Community Engagement Councils across the country to foster community understanding and support for people with food allergies by working locally with parents, patients, professionals and the public on new initiatives.
- Partnered with child actor August Maturo to raise awareness of food allergies and FARE's campaigns.
- Brought together communities in 48 cities for FARE Walk for Food Allergy, raising awareness of food allergies and raising approximately $2 million to support FARE's mission.
- Encouraged Americans to take action and make an impact during Food Allergy Action Month, an expansion of the annual Food Allergy Awareness Week campaign. This year's widely embraced theme was "React with Respect;" we also saw the iconic Empire State Building shine in teal in recognition of Food Allergy Awareness Week for the first time.
- Developed one-of-a-kind resources for traveling internationally, in collaboration with our partners at the International Food Allergy & Anaphylaxis Alliance. The new travel tips for visiting places like Australia, Japan and others are customized and written by advocacy leaders in each respective country.
HEALTH – FARE works to enhance the healthcare access of individuals with food allergies to state-of-the-art diagnosis and treatment. In 2016, FARE:
- Initiated, organized and led sponsorship of "Finding a Path to Safety in Food Allergy," a comprehensive report on the origins, prevalence, diagnosis and management of food allergies developed by the National Academies of Sciences, Engineering and Medicine. Released in November 2016, this remarkable report has a strong call to action to protect the safety of people with food allergies and identify paths to prevention and treatment.
- Worked to improve access to affordable epinephrine. FARE met with representatives of epinephrine auto-injector companies to offer assistance in setting up patient access plans and surveyed more than 4,500 constituents to gain a better understanding of patient perspectives. FARE was the only patient organization that took a public stance for the affordability of epinephrine by refusing to accept funds from companies in the epinephrine auto-injector space until meaningful competition exists. FARE mobilized families to tell their legislators about the issues of access and affordability of epinephrine and is actively working to bring together all stakeholders - including members of Congress - to develop common sense solutions.
- Advanced efforts to expand the Food Allergen Labeling Consumer Protection Act (FALCPA) to include sesame as a major allergen.
- Delivered nearly 30,000 copies of Your Food Allergy Food Guide. FARE's free toolkit that provides patients and their families with critical information to bridge them from initial diagnosis to living well with food allergies. Since this program began in November 2013, FARE has distributed more than 140,000 of these critical educational resources. A digital version may be downloaded for free from FARE's website.
HOPE – FARE encourages and funds research in both industry and academia that promises new treatments to improve the allergic condition. In 2016, FARE:
- Expanded the FARE Clinical Network, a revolutionary food allergy research collaborative. We're now supporting the efforts of 28 clinical care and research facilities across the country at an annual investment of $2.7 million. This groundbreaking research collaborative consists of 28 leading centers of excellence across the country and allows for a coordinated approach to food allergy research - a critical component of accelerating the pace of research.
- Renewed our investment in the FARE Investigator in Food Allergy Awards. This multimillion dollar, multiyear research grant program is aimed at attracting gifted early and mid-career investigators to the field of food allergy. The recipients of the second cycle of awards will be announced in early 2017.
- Convened its fourth Research Retreat, bringing together 80 researchers, senior government officials, industry representatives and food allergy advocates from around the world. Recipients of the 2015 FARE Investigator in Food Allergy Awards had the opportunity to present on their progress in front of longtime food allergy researchers.
- Saw results published from the LEAP On study, a follow-up to the groundbreaking LEAP study, which provided strong evidence that early introduction of peanut to high-risk infants prevents them from developing peanut allergy. LEAP On examined the question of whether study participants who had consumed peanut for more than four years were protected long-term against peanut allergy when they stopped eating peanut. Co-funded by FARE and the National Institute Health, the LEAP and LEAP On studies have provided impetus for what is soon to be a major change in infant feeding guidelines published by the National Institute of Allergy and Infectious Diseases. FARE was part of the Coordinating Committee that reviewed the guidelines.
In addition to the LEAP On study, in 2016, wide-ranging studies funded by FARE were published in peer-reviewed journals. Topics included:
- Role of Xolair in Rapid Oral Desensitization for Peanut Allergy (PRROTECT study)
- Food Allergen Labeling and Purchasing Habits in the US and Canada
- Global Survey on Food Allergen Thresholds
- Parent Report of Food Allergy Management by Pediatricians and Allergists
- Cardiovascular Risk Factors in Parents of Food-Allergic Children
- Established the Outcomes Research Advisory Board, the center of a new project, "Empowering Patient Partners and Key Stakeholders to Develop a Patient-Centric Food Allergy Research Program," which seeks to address an unmet need in the research field by developing a partnership of patients empowered to work with key stakeholder. This program is made possible by a Eugene Washington Engagement Award from the Patient-Centered Outcomes Research Institute.
Your donations help ensure that these programs – and many others – will continue to make a difference in thousands of lives in 2017. Thank you for your support!