FARE is the largest organization serving as the voice of the 32 million Americans, including 5.6 million children under 18, living with life-threatening food allergies. Its mission is to improve the quality of life and the health of individuals with food allergies, and to fund research that drives introduction of new therapies and treatments.
FARE has a long track record of successfully engaging in advocacy to improve the quality of life for those living with food allergies. As a result of its work, more than 40 states have enacted laws that either require schools to permit a student to self-carry an EpiPen Auto Injector or to stock EpiPens. It has also achieved success in enacting statutes in Illinois, Massachusetts, Rhode Island, Michigan, and Virginia, as well as a few municipalities, to require some form of training so restaurant workers are more aware of food allergy risks. FARE also has an active federal advocacy agenda.
FARE has made a major commitment to growing and investing significantly in its advocacy capabilities. To this end, it is seeking an individual to become Vice President, Advocacy to build and lead its advocacy programs. This is a rare opportunity for someone to come in on the ground floor and build a first-in-class advocacy program. The position will be a direct report to the Chief of Education, Advocacy and MarCom. In addition this individual will also work closely with the CEO, Medical Advisors, Chief of Research and Innovation and Board chair on regulatory matters. In this role, the person will be responsible for the development and implementation of FARE’s government affairs initiatives aimed at actions to significantly influence national leaders in the public and private sectors to implement policies and programs that support the mission and goals of FARE. The major responsibilities for this person will be to:
- Establish, manage and oversee all aspects of FARE’s advocacy program, including federal, state, and local advocacy efforts, grassroots programs, regulatory policies, and general health policy advocacy.
- Analyze federal and state issues relevant to FARE, develop and secure internal and external support for FARE’s positions on key issues, conduct necessary advocacy research, draft and/or oversee creation of all advocacy materials, including fact sheets, leave behinds, testimony, and regulatory filings.
- Directly develop, nurture, and sustain relationships with key elected officials, relevant government agencies such as HHS, NIH and FDA, other food allergy, health, and related organizations, and other stakeholders that can influence FARE’s agenda.
- Engage and supervise all outside consultants retained by FARE for government affairs work.
- Strategically develop and direct federal issue campaigns and create and/or join coalitions that can advance FARE’s policy priorities.
- Manage the government relations team responsible for federal legislative and regulatory efforts.
- Oversee FARE’s grassroots and grasstops programs to ensure the food allergy community is fully engaged in supporting FARE’s goals.
- Work with FARE’s research and scientific experts to identify key regulatory and health policy issues relevant to FARE.
- Inform and advise FARE’s executive staff leadership and its Board on key advocacy objectives and strategies.
- Represent FARE at coalition meetings and other government affairs events where FARE’s presence is required to support advocacy goals.
The ideal candidate will have:
- 10+ years as a government affairs professional in Washington, DC.
- Experience working on health and/or disease research policy issues.
- Experience working with or in a patient advocacy organization.
- Demonstrated mastery of innovative new approaching to influencing public policy, including the effective use of digital and social media and big data.
- Strong research, writing, analytical and persuasive communication skills.
- Ability to represent FARE in public settings articulately and persuasively, including in one-on-one meetings with legislators and staff, testimony before congressional or regulatory bodies, and at conferences and other events where FARE’s voice is heard.
- Strong strategic planning skills and the ability to set an agenda, develop internal support and consensus around it, and execute it on time and on budget.
- Ability to work at a fast pace and juggle multiple tasks simultaneously.
- A team player and the ability to operate in a cross-functional environment.
- Experience effectively managing a team in an integrated environment.
- Excellent political acumen.
- Established reputation as a leader in the health policy sector.
- Proven ability to work in bipartisan manner.
- Compensation for the position is commensurate with experience, and an outstanding benefits plan is included.