FARE Blog

How We’ll Fight for Food Allergy Research Funding

By Jon Hoffman

Jon Hoffman

More than 32 million people have food allergies. Treatments and a cure will be found the same way they’re found for other major diseases—through research.

Unfortunately food allergy research is severely underfunded, compared to both to the size of the epidemic and the funding provided for other diseases with fewer patients. The National Institutes of Health (NIH), the federal government agency that oversees disease research, has a total budget of about $120 per US resident. Of that funding, food allergies receive on...

How Parents Can Help Their Kids Prepare for Back-to-School Season

A guest post by Teen Advisory Group member Talia Gold.

As I enter my final year of high school, I continue to be severely allergic to peanuts, tree nuts, eggs, dairy, all legumes, mustard and soy. I have had about seven anaphylactic reactions throughout my youth, my first at the age of 13. Since then I have learned my telltale symptoms and take every precaution under the sun to avoid my allergens and future reactions. However, growing up I always was embarrassed by my food allergies, especially with the start of every new school year....

Better Treatments and a Cure Start with Advocacy

By Lisa Gable and Jon Hoffman

We’re tackling a big challenge: Federal funding for food allergy research 

As the number of people with food allergies skyrockets, the federal government is falling behind. Food allergy research is among the lowest funded of all major diseases. 

More must be done, and FARE is leading the way. We are mobilizing our community across the country to deliver a simple message to policymakers in Washington: It is time to fund research for real treatments and, ultimately, a cure. 

FARE has always been...

Milk Allergy in Early Infancy: One Mom’s Story

Elizabeth’s five-month-old daughter Carly was diagnosed as a newborn with allergies to milk and soy. Here Elizabeth tells how Carly has benefited from nutritional intervention following her diagnosis.

I first knew something was “off” when Carly was about two days old and we were still in the hospital. She was fussy after eating and gassy. I spoke to the nurse and she said we could switch from milk-based formula to soy formula, so we did that. At her intake appointment with the pediatrician when she was six days old, her doctor...

Webinar Recap: Families Preparing for a Safe Freshman Food Allergy Experience

Your high school student with food allergies will soon head off to college. How will they find the accommodations they need, and what can they safely eat? Find answers to your college dining questions in a July 2019 webinar now available on foodallergy.org. Families Preparing for a Safe Freshman Food Allergy Experience is packed with helpful information from presenter Beth Winthrop, MS, RD, who shares what she learned working for Sodexo as a clinical nutrition manager and dietetic internship director.

Beth empathetically outlines how...

Preparing for College Life

A guest post by Teen Advisory Group member Mimi Hymel.

I graduated from high school this past May, and I am so excited to start my next adventure – college life! I am headed away from home and will live on campus, which is another exciting adventure, but it is also really scary. Lots of college freshman get homesick, and I am sure I will too, but I have an extra challenge – eating on campus and making sure my food is safe.

I handled this challenge just like I have always handled my food allergy, by being pro-active.  First, I...

Study: A Newly Identified Immune Cell Drives Anaphylaxis in Mice

In a FARE-funded study published in the prestigious journal Science, researchers at Yale University and other institutions report the discovery of a subset of immune cells that is important in anaphylaxis, a severe and potentially life-threatening allergic reaction. The study team was led by Dr. Stephanie Eisenbarth, who received a FARE Investigator in Food Allergy award in 2017 and is the Ira & Diana Riklis Family Research Award in Food Allergy Recipient. 

Anaphylaxis can be triggered when a defense protein in the blood, an antibody...

Hope for the Future

A guest post by Teen Advisory Group member Andrea Schmidt.

Not long ago, I received an email from a wonderful allergen-free food company: “We’re turning 18!” Then I felt old. Okay, maybe I’m only a year and a half older. But this is, pretty uniquely, an “Oh geez, I’m aging!” experience that only someone with food allergies would have. Anyways, it got me thinking about how much progress has been made regarding food allergies in the 19 years of my life, and how much progress I am confident will be made in the future.

When I was...

Three Key Tips for Safety and Fun

A guest post by Teen Advisory Group member Ramsey Makan.

I am allergic to more than 20 foods.

This includes seven of the big eight (excluding wheat) along with many legumes and lentils in addition to sesame and mustard. As you can imagine, this really complicates my life. If I didn’t have these allergies, I’d eat wherever I want without worry. I’d hang out with friends without worrying about whether or not I have my epinephrine. Heck, I’d probably not be a part of TAG! However, I clearly do have them. But they don’t stop me from...

A Decade of Exemplary Service to the Community

Mary Jane Marchisotto

When Mary Jane Marchisotto first joined the Food Allergy Initiative (FAI), she brought with her 30 years of experience in the financial services industry and little to no experience in food allergy. But while her knowledge of the space at the time was limited at the time of her joining FAI, she had an unbounded dedication to advancing research toward a cure for this potentially life-threatening disease. 

She quickly became an expert in her new field and over the last decade, has amassed a long list of accomplishments that have made an...

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