FARE Blog

A Conversation with Lisa Gable, FARE’s CEO

This week, Lisa Gable joined Food Allergy Research & Education as its new CEO. Lisa comes to FARE with more than 30 years of executive leadership experience and has represented global public-private partnerships and nonprofits, working to build organizations to their maximum potential.

We are thrilled to welcome Lisa and asked her five questions to introduce her to the food allergy community.

 

First, please tell us a little about your diverse background.

I am honored to have to been selected to lead FARE at this critical time. My background is...

Food Allergy Hero Spotlight: Swati Shah

Swati Shah learned about FARE’s Food Allergy Heroes Walk this year and immediately jumped at the chance to get involved and make a difference for the food allergy community by joining the Northern Virginia Food Allergy Heroes Walk committee. She also started a walk team that now has over 50 members! We asked Swati to share a little about her food allergy journey and why she walks.

 

Tell us about your connection to food allergies.

My son was diagnosed with multiple food allergies when he was 18 months old. It was a huge shock, but we educated...

Food Allergy Awareness Day in Albany, NY: An Agenda to Save Lives

About two dozen advocates from across New York, some of whom have lost a family member to anaphylaxis, convened in Albany to participate in FARE’s Food Allergy Awareness Day on May 16. Partnering with the Allergy Advocacy Association, a Rochester-based, statewide advocacy group, FARE’s Senior National Director of Advocacy Jen Jobrack and Associate Director of Advocacy Jon Hoffman coordinated meetings with 30 members of the Assembly and Senate and, with the help of the advocates, provided materials to every legislative office across the Capitol and staffed a Food Allergy Awareness Week table....

A New Diagnostic Test for Peanut Allergy

A new method for diagnosing peanut allergy was outlined in a letter published last month in the Journal of Allergy and Clinical Immunology (JACI). This mast cell activation test was compared to other available diagnostic tests on the basis of sensitivity (the rate of true positive tests, in which a disease is successfully identified) and specificity (the rate of true negative tests, in which a disease that isn’t present is successfully ruled out).

Each test currently used to diagnose peanut allergy has some drawbacks:

Highlights from the 2018 Food Allergy Awareness Week

Throughout the month of May, thousands of people around the country shined a light on food allergies in various ways – from  participating in FARE’s daily Food Allergy Awareness Action Steps, to asking their legislators to issue proclamations declaring May 13-19, 2018 Food Allergy Awareness Week, to leading awareness events in their schools and communities and much more. Here are just a few highlights from this year’s Food Allergy Awareness Week.

 

1. Legislators in 43 states declared May 13-19, 2018 Food Allergy Awareness Week.

This year, FARE saw the food allergy community come out in...

Food Allergy Hero Spotlight: Lily Roth

Recent college graduate Lily Roth is a vocal food allergy advocate and volunteer for FARE’s Food Allergy Heroes Walk in Pittsburgh. Lily majored in emergency medicine with a minor in chemistry and plans to attend medical school to become a pediatric emergency physician and an EMS physician. We asked Lily to share a little about what it is like to have food allergies at college and why she walks in FARE’s Food Allergy Heroes Walk.

 

What are your food allergies?

I have a long list of allergies including many in the top 8 and some allergens that are not...

A Word of Thanks to FARE’s Food Allergy Awareness Week Sponsors

Food Allergy Awareness Week shines a light on the seriousness of food allergies each year in May. By increasing awareness, we can encourage respect, promote safety and improve the quality of life for the 15 million Americans with food allergies, including all those at risk for life-threatening anaphylaxis.

FARE would like to highlight and thank the corporate sponsors who have helped make our awareness efforts last week possible. Please note the FARE does not endorse companies, products, or services. FARE encourages the community to conduct their own independent research of such companies,...

Be the Future of Food Allergy Research: Join the FARE Patient Registry

The FARE Patient Registry marks its first-year anniversary today. We’re celebrating this milestone by encouraging food allergy patients (or their legal representatives) to join the registry’s clinical trial.

The registry is a platform that connects people living with food allergy to researchers looking for solutions. Participants answer survey questions about their experiences with diagnosed food allergy. The registry collects and organizes these patient experiences in a privacy-protected online database. Investigators can then search the de-identified...

Combating Media Misrepresentations

Guest post by Teen Advisory Group (TAG) member Colin Lapus

It seems as if the whole world has heard about the scandal and chaos revolving around the food allergy-related scene in the recent film Peter Rabbit. This particular instance has caught the attention of the entire world, but there are countless other examples where food allergies are featured prominently in pop culture and mainstream media. As someone with food allergies, especially a child, how do you deal with others asking or talking about a misrepresentation they saw of food allergies in the...

Food Allergy Hero Spotlight: Aimee Campbell

 

FARE’s Hometown Heroes Community Walk for Food Allergy launched last year as a volunteer-driven FARE supported fun and festive event in cities and towns where there is no Food Allergy Heroes Walk.  Food allergy mom Aimee Campbell is relatively new to food allergies but that hasn’t stopped her from leading a Hometown Heroes Walk in Idaho Falls, ID on Saturday August 18 at the Community Park Gazebo. Learn more about her and why she and her family walk.

Tell us about your connection to food allergies.

Our two-year son was diagnosed at 15 months with...

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