FARE Blog

FARE's Summer of Advocacy

By Lisa Gable and Jon Hoffman

The food allergy community needs better labeling, access to real treatments and, ultimately, a cure. FARE tackled each of these challenges this summer.

BUILDING MOMENTUM IN CONGRESS FOR MORE RESEARCH AND SESAME LABELING

You’ve likely heard our mantra this summer: There are 32 million people with food allergies. Yet, there are no treatments available.

That is why we’re mobilizing the food allergy community to tell Congress to pass the FASTER Act. 

The FASTER Act lays critical groundwork for...

FDA advisory committee votes to recommend approval of breakthrough peanut allergy treatment

Today, Food and Drug Administration (FDA) panelists voted to recommend the approval of Aimmune Therapeutics’ groundbreaking peanut allergy treatment, AR101, for patients aged 4-17. The FDA held the advisory committee meeting to review and make recommendations on the safety and effectiveness of the product. While AR101 is not yet approved, the recommendation of the advisory committee is key milestone in the FDA’s review process. FARE’s CEO, Lisa Gable, spoke on behalf of the food allergy community during the meeting. 

“Food allergy...

FDA to hear evidence, patient perspective on breakthrough peanut allergy therapy

On Friday, September 13, the Food and Drug Administration (FDA) will hold an advisory committee meeting to review and make recommendations on the safety and effectiveness of Aimmune Therapeutics’ groundbreaking peanut allergy treatment, AR101. The committee meeting will feature the stories of clinical trial participants, families and patients living with peanut allergy and the insights of researchers and advocates. If the committee recommends the safety and efficacy of AR101, a final ruling by the FDA could make the therapy the first FDA-approved treatment for food allergies, making this a...

Peanut Sublingual Immunotherapy Study Reports Improved Tolerance, Favorable Safety in Children

As the food allergy community awaits Food and Drug Administration approval of two possible treatments for peanut allergy – Aimmune’s AR101 peanut oral immunotherapy product and DBV’s Viaskin Peanut patch for epicutaneous (“on the skin”) immunotherapy – a third approach to peanut allergy treatment made news this week.

A small phase 2 clinical trial by researchers at the University of North Carolina (UNC) found that about two-thirds of peanut-allergic children who received daily doses of dissolved peanut protein under the tongue were...

How We’ll Fight for Food Allergy Research Funding

By Jon Hoffman

Jon Hoffman

More than 32 million people have food allergies. Treatments and a cure will be found the same way they’re found for other major diseases—through research.

Unfortunately food allergy research is severely underfunded, compared to both to the size of the epidemic and the funding provided for other diseases with fewer patients. The National Institutes of Health (NIH), the federal government agency that oversees disease research, has a total budget of about $120 per US resident. Of that funding, food allergies receive on...

How Parents Can Help Their Kids Prepare for Back-to-School Season

A guest post by Teen Advisory Group member Talia Gold.

As I enter my final year of high school, I continue to be severely allergic to peanuts, tree nuts, eggs, dairy, all legumes, mustard and soy. I have had about seven anaphylactic reactions throughout my youth, my first at the age of 13. Since then I have learned my telltale symptoms and take every precaution under the sun to avoid my allergens and future reactions. However, growing up I always was embarrassed by my food allergies, especially with the start of every new school year....

Better Treatments and a Cure Start with Advocacy

By Lisa Gable and Jon Hoffman

We’re tackling a big challenge: Federal funding for food allergy research 

As the number of people with food allergies skyrockets, the federal government is falling behind. Food allergy research is among the lowest funded of all major diseases. 

More must be done, and FARE is leading the way. We are mobilizing our community across the country to deliver a simple message to policymakers in Washington: It is time to fund research for real treatments and, ultimately, a cure. 

FARE has always been...

Milk Allergy in Early Infancy: One Mom’s Story

Elizabeth’s five-month-old daughter Carly was diagnosed as a newborn with allergies to milk and soy. Here Elizabeth tells how Carly has benefited from nutritional intervention following her diagnosis.

I first knew something was “off” when Carly was about two days old and we were still in the hospital. She was fussy after eating and gassy. I spoke to the nurse and she said we could switch from milk-based formula to soy formula, so we did that. At her intake appointment with the pediatrician when she was six days old, her doctor...

Webinar Recap: Families Preparing for a Safe Freshman Food Allergy Experience

Your high school student with food allergies will soon head off to college. How will they find the accommodations they need, and what can they safely eat? Find answers to your college dining questions in a July 2019 webinar now available on foodallergy.org. Families Preparing for a Safe Freshman Food Allergy Experience is packed with helpful information from presenter Beth Winthrop, MS, RD, who shares what she learned working for Sodexo as a clinical nutrition manager and dietetic internship director.

Beth empathetically outlines how...

Preparing for College Life

A guest post by Teen Advisory Group member Mimi Hymel.

I graduated from high school this past May, and I am so excited to start my next adventure – college life! I am headed away from home and will live on campus, which is another exciting adventure, but it is also really scary. Lots of college freshman get homesick, and I am sure I will too, but I have an extra challenge – eating on campus and making sure my food is safe.

I handled this challenge just like I have always handled my food allergy, by being pro-active.  First, I...

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