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15 Million Reasons to Walk: 2014 FARE Walk for Food Allergy Kicks Off
4/24/2014

Walkers Unite to Raise Awareness and Critical Funds for a Cure in More Than 65 Events Nationwide
 
McLEAN, VA. (April 24, 2014) – Up to 15 million Americans have a food allergy, which means there are 15 million reasons to get involved with efforts to find a cure. Food Allergy Research & Education (FARE), the nation’s leading nonprofit organization dedicated to finding a cure for food allergies and supporting the food allergy community, will host more than 65 FARE Walk for Food Allergy events across the country this year. This national program not only increases awareness of food allergy as a growing public health issue, but also raises vital funds to accelerate world-class research, create educational resources, and advance advocacy priorities.

The FARE Walk for Food Allergy, presented by Mylan, gathers friends, families, neighbors and co-workers together from coast to coast. In 2013, the 65 FARE Walk for Food Allergy events attracted 40,000 people who participated in raising a record $3.6 million. FARE aims to break this fundraising record yet again, in keeping with its commitment to finding a cure for food allergy and ensuring the safety and inclusion of individuals affected by this life-altering and potentially life-threatening disease.

“Food allergy is an increasingly common disease for which there currently is no cure. It affects people of all ages, races, geographies and economic means, and with so many people affected, chances are you know someone with a food allergy,” said John L. Lehr, chief executive officer of FARE. “By joining the FARE Walk for Food Allergy or donating to a walker, you are helping us invest in life-changing research, and in programs that will improve the safety and quality of life for those who are managing this life-altering and potentially life-threatening disease.”
 
Food allergies are a serious and growing public health issue affecting every area of life. The CDC reports that the number of children with food allergy has increased by a staggering 50 percent since 1997, and every three minutes a food allergy reaction sends someone to the emergency room. President Obama’s recent signature on the School Access to Emergency Epinephrine Act supports the need to protect students with food allergies, but more research, education, advocacy and awareness efforts are needed to improve prevention and treatment options, ensure school and work environments are safe and inclusive, train restaurants and dining halls to take proper precautions, and increase understanding of food allergy. The funds raised through the FARE Walk for Food Allergy support FARE’s work in all of these mission areas.

“The FARE Walk for Food Allergy events are an important vehicle to continue to raise awareness of food allergies, a growing public health issue that affects approximately one in 13 children in the U.S.,” said Roger D. Graham Jr., president of Mylan Specialty. “Mylan is proud to play a part in FARE’s fundraising and awareness-building efforts as the national presenting sponsor of the walk events for the eighth consecutive year. These events are a wonderful opportunity to help extend awareness and education in local communities and support Mylan’s long-standing commitment to helping those with life-threatening allergies.”

The FARE Walk for Food Allergy, which kicks off April 26 in Morgantown, W. Va., has raised more than $19 million since its inception in 2004. Open to all, anyone may form a team or participate as an individual to support this important cause and help us say FAREwell to food allergies. With 15 million Americans living with food allergies, there are 15 million reasons to walk.

For a list of all FARE Walk for Food Allergy events, to register, form a team or make a donation, visit www.foodallergywalk.org.

ABOUT FARE
Food Allergy Research & Education (FARE) works on behalf of the 15 million Americans with food allergies, including all those at risk for life-threatening anaphylaxis. This potentially deadly disease affects 1 in every 13 children in the U.S. – or roughly two in every classroom. Formed in 2012 as a result of a merger between the Food Allergy & Anaphylaxis Network and the Food Allergy Initiative, FARE’s mission is to find a cure for food allergies, and to keep individuals safe and included.  We do this by investing in world-class research that advances treatment and understanding of the disease, providing evidence-based education and resources, undertaking advocacy at all levels of government and increasing awareness of food allergy as a serious public health issue. For more information, please visit www.foodallergy.org and find us on Twitter @FoodAllergyFacebookYouTube and Pinterest.

Food Allergy Research & Education Launches Online Resource Center for Diners with Food Allergies
4/17/2014

SafeFARE Website and PSA Offer Tips and Tools for Dining Out Safely

McLean, Va. (April 17, 2014) – Food Allergy Research & Education (FARE) today announced the launch of the SafeFARE program, an online resource center and public service announcement (PSA) featuring celebrity chefs Bryan Voltaggio and Mike Isabella. The goal of the program is to make dining out safer and more enjoyable for individuals and families managing food allergies. 

The SafeFARE website (www.safefare.org) offers tools and resources for diners with food allergies, including tips for before and during their visit to the restaurant, a customizable “Food Allergy Alert” chef card, and a “Find a Restaurant” feature that enables visitors to locate food allergy aware restaurants in their area. To qualify for inclusion in the searchable database, restaurants must have staff who have completed either the National Restaurant Association’s ServSafe® Allergens Online Course or MenuTrinfo’s AllerTrain™ course. Each restaurant’s listing also includes the type of cuisine served, food allergy policies, a link to the eatery’s entry in the AllergyEats online directory, and more. 

To build awareness of the SafeFARE program, FARE is distributing its “Food Allergy Teamwork” PSA to TV and radio stations nationwide. The PSA highlights the features of the SafeFARE resource center and underscores the importance of cooperation between diners with food allergies and restaurant staff.  

“If you’re one of the 15 million Americans living with a food allergy, dining out can pose a significant challenge,” said John L. Lehr, chief executive officer of FARE. “Planning and preparation are key to staying safe. FARE is proud to offer the SafeFARE program, which will improve quality of life for individuals and families managing food allergies by providing helpful resources and connecting them with restaurants that are committed to meeting their needs. We also hope that the program will encourage restaurateurs across the country to provide food allergy training for their staff and to list their restaurants on www.safefare.org. Diners with food allergies are eager to find restaurants that take allergy safety seriously – and when they do, they come back again and again.”

In addition to teaming with the National Restaurant Association to develop the ServSafe Allergens Online Course, FARE is partnering with MenuTrinfo, a provider of nutritional analysis and allergen training, to offer its AllerTrain program to foodservice operators. 

To access the SafeFARE online resource center, view the “Food Allergy Teamwork” PSA, and learn more about training for restaurant staff, visit www.safefare.org.

ABOUT FARE
Food Allergy Research & Education (FARE) works on behalf of the 15 million Americans with food allergies, including all those at risk for life-threatening anaphylaxis. This potentially deadly disease affects 1 in every 13 children in the U.S. – or roughly two in every classroom. Formed in 2012 as a result of a merger between the Food Allergy & Anaphylaxis Network and the Food Allergy Initiative, FARE’s mission is to find a cure for food allergies, and to keep individuals safe and included. We do this by investing in world-class research that advances treatment and understanding of the disease, providing evidence-based education and resources, undertaking advocacy at all levels of government and increasing awareness of food allergy as a serious public health issue. For more information, please visit www.foodallergy.org and find us on Twitter Twitter @FoodAllergyFacebookYouTube and Pinterest.

Food Allergy Research & Education Convenes Second College Food Allergy Summit
4/10/2014

Representatives from 30 Campuses Will Contribute to Guidelines for Managing Food Allergies

McLean, Va. (April 10, 2014) – Food Allergy Research & Education (FARE), the nation’s leading nonprofit dedicated to food allergy, will be hosting its second College Food Allergy Summit on April 11-13, 2014 at the University of Arizona, where experts will gather to continue work on the creation of comprehensive guidelines that will address managing food allergies in every aspect of the college experience. The summit is part of the newly launched FARE College Food Allergy Program, which was announced in January.

The first College Food Allergy Summit focused on addressing food allergy needs in the dining services realm. This second summit will focus on going beyond the dining hall – addressing the needs of students with food allergies with respect to housing and resident life, disability and health services, and social life.

“It is critically important for colleges to understand the issues that students with food allergies face on a daily basis and establish solid food allergy management policies,” said John L. Lehr, chief executive officer of FARE. “We already have received a tremendous amount of interest and support from schools looking to better serve their campus communities, so we are looking forward to a productive summit that will help us establish in depth best practices for managing food allergies in the college environment.”

The FARE College Food Allergy Program is aimed at providing students with food allergies a safer college experience by helping colleges and universities develop uniform policies to effectively manage this potentially life-threatening disease. FARE kicked off the program on Jan. 16, 2014, with the first College Food Allergy Summit at Virginia Tech, where 30 college and university representatives participated in extensive discussions about food allergy management, particularly training and management of food allergy in the dining hall.

Those discussions, along with the outcome of workshops taking place this weekend, will form the framework for best-practice guidelines and other tools that will be piloted by at least a half-dozen colleges in the coming year.

“The resources we are creating through the FARE College Food Allergy Program will help schools ensure they have a strong foundation of policies detailing food allergy management in every aspect of college life,” said Mike Spigler, vice president of education at FARE. “College-wide policies are necessary, and it is also important for colleges to be flexible enough to address the food allergy needs of each individual student.”

Representatives from the National Association for College and University Attorneys and the Association on Higher Education and Disability will be providing valued input at this summit.

FARE is proud to be partnering with the National Foundation for Celiac Awareness and the National Association of College & University Food Services for this program, and to be collaborating with food allergy experts, college and university representatives, and foodservice industry representatives from Premier REACH, Sodexo, Compass Group, Aramark and US Foods. Schools with representatives at this weekend’s summit are:

  • Bowling Green University (Bowling Green, Ohio)
  • Colorado State University (Fort Collins, Colo.)
  • Concordia University (Portland, Ore.)
  • College of the Holy Cross (Worcester, Mass.)
  • Elon University (Elon, NC)
  • King’s College (New York, NY)
  • Meredith College (Raleigh, NC)
  • North Carolina State University (Raleigh, NC)
  • Northwestern University (Evanston, Ill.)
  • The Ohio State University (Columbus, Ohio)
  • Pennsylvania State University (State College, Pa.)
  • Purdue University (West Lafayette, Ind.)
  • Stanford University (Stanford, Calif.)
  • Stony Brook University (Stony Brook, NY)
  • State University of New York at Cobleskill (Cobleskill, NY)
  • Texas A & M University (College Station, Texas)
  • University of Florida (Gainesville, Fla.)
  • University of Maryland (College Park, Md.)
  • University of North Carolina at Chapel Hill (Chapel Hill, NC)
  • University of Southern California (Los Angeles, Calif.)
  • The University of Texas at Austin (Austin, Texas)
  • University of Virginia (Charlottesville, Va.)
  • Union University (Jackson, Tenn.)
  • The University of Chicago (Chicago, Ill.)
  • University of Kansas (Lawrence, Kan.)
  • University of Michigan (Ann Arbor, Mich.)
  • Wake Forest University (Winston-Salem, NC)
  • Wesleyan University (Middletown, Conn.)
  • Williams College (Williamstown, Mass.)

For more information about the FARE College Food Allergy Program, visit www.foodallergy.org/collegeprogram.

ABOUT FARE
Food Allergy Research & Education (FARE) works on behalf of the 15 million Americans with food allergies, including all those at risk for life-threatening anaphylaxis. This potentially deadly disease affects 1 in every 13 children in the U.S. – or roughly two in every classroom. Formed in 2012 as a result of a merger between the Food Allergy & Anaphylaxis Network and the Food Allergy Initiative, FARE’s mission is to find a cure for food allergies, and to keep individuals safe and included. We do this by investing in world-class research that advances treatment and understanding of the disease, providing evidence-based education and resources, undertaking advocacy at all levels of government and increasing awareness of food allergy as a serious public health issue. For more information, please visit www.foodallergy.org and find us on Twitter Twitter @FoodAllergyFacebookYouTube and Pinterest.


Giving Back: Food Allergy Research & Education Awards More Than $135,000 in Support to 60 Communities Nationwide
4/2/2014

Community Outreach Grant Program promotes local education, advocacy and awareness efforts

McLean, Va. (April 2, 2014) – Food Allergy Research & Education (FARE), the nation’s leading nonprofit dedicated to food allergies, is proud to announce the funding of 60 Community Outreach Grants to advance food allergy education, advocacy and awareness in local communities nationwide. FARE’s 2014 Community Outreach Grant Program is awarding $136,033 in grant support, which is the largest grant pool ever awarded through the program in a single year, and more than double the amount awarded in 2013.

The FARE Community Outreach Grants Program empowers local food allergy leaders – food allergy support group leaders and FARE Walk for Food Allergy walk chairs – to run education and awareness programs targeted at bringing a better understanding of food allergies to their local communities.

“With these grants, communities across the country will benefit from the many innovative food allergy education, advocacy and awareness programs organized by local food allergy leaders this year. Together, we are making a lasting impact,” said John L. Lehr, chief executive officer of FARE. “We are so pleased to be able to support and work closely with the many volunteers who continue to dedicate a tremendous amount of their time advocating on behalf of families affected by food allergies and anaphylaxis.”

FARE will be providing funding for a wide spectrum of projects in 30 states, including:

* Four regional food allergy conferences and several regional symposiums
* More than a dozen concerts for young children by food allergy musician Kyle Dine
* Programs to assist with implementation of the school food allergy guidelines issued by the Centers for Disease Control and Prevention
* Specialized educational programs such as first responder anaphylaxis training, back-to-school with food allergies, presentations on Section 504 plans and allergen-friendly cooking demonstrations
* Kid-centric events such as food allergy friendly Easter egg hunts, “Freeze Pops to say FAREwell to Food Allergies” and Halloween parties
The grants also cover training costs, resource material purchases, Food Allergy Awareness Week materials, and much more.

Support group leaders and FARE Walk for Food Allergy chairs will be coordinating grant-funded projects, all of which are designed to be carried out in their local communities, throughout 2014.  Applications were peer-reviewed by a selection committee and awarded based on community need, scope, anticipated impact, achievability of project objectives, cost efficiency and geographic diversity.

For more information about food allergies, visit www.foodallergy.org.

ABOUT FARE
Food Allergy Research & Education (FARE) works on behalf of the 15 million Americans with food allergies, including all those at risk for life-threatening anaphylaxis. This potentially deadly disease affects 1 in every 13 children in the U.S. – or roughly two in every classroom. Formed in 2012 as a result of a merger between the Food Allergy & Anaphylaxis Network and the Food Allergy Initiative, FARE’s mission is to find a cure for food allergies, and to keep individuals safe and included.  We do this by investing in world-class research that advances treatment and understanding of the disease, providing evidence-based education and resources, undertaking advocacy at all levels of government and increasing awareness of food allergy as a serious public health issue.  For more information, please visit www.foodallergy.org and find us on Twitter @FoodAllergyFacebookYouTube and Pinterest.


Food Allergy Research & Education Welcomes Joseph Ianniello to Board of Directors
3/5/2014

Food Allergy Research & Education (FARE) announced today that Joseph Ianniello, chief operating officer for CBS Corporation, has been elected to its Board of Directors. FARE is the leading national nonprofit organization working on behalf of the 15 million Americans with food allergy.

Ianniello oversees all financial operations of CBS Corporation, a mass media company that owns the most-watched television network in the U.S. and one of the world’s largest libraries of entertainment content. He previously served as the company’s chief financial officer, senior vice president, chief development officer and treasurer. 

“I am so pleased to welcome Joe to FARE’s Board of Directors. He shares our passionate commitment to our mission of finding a cure for food allergies, and to keeping individuals with food allergies safe and included,” said Todd J. Slotkin, chairman of FARE’s Board of Directors. “I look forward to working with Joe and with all of FARE’s dedicated board members and staff to continue to pursue critical advances in research and in improving quality of life for individuals and families with food allergies.”  

FARE’s Board of Directors is comprised almost entirely of food allergy parents and grandparents who bring a broad range of expertise to guiding FARE in its mission and work. Ianniello is the father of two children with food allergies. Ianniello also serves on the board of the charitable organization New Alternatives for Children. 

“FARE has been an invaluable resource for hundreds of thousands of families across the United States, including mine,” Ianniello said. “I look forward to working with my fellow board members as FARE continues to make a difference in the lives of those affected by food allergies and anaphylaxis.” 
For more information about food allergies, visit www.foodallergy.org. 

ABOUT FARE
Food Allergy Research & Education (FARE) works on behalf of the 15 million Americans with food allergies, including all those at risk for life-threatening anaphylaxis. This potentially deadly disease affects 1 in every 13 children in the U.S. – or roughly two in every classroom. Formed in 2012 as a result of a merger between the Food Allergy & Anaphylaxis Network and the Food Allergy Initiative, FARE’s mission is to find a cure for food allergies, and to keep individuals safe and included.  We do this by investing in world-class research that advances treatment and understanding of the disease, providing evidence-based education and resources, undertaking advocacy at all levels of government and increasing awareness of food allergy as a serious public health issue.  For more information, please visit www.foodallergy.org and find us on Twitter @FoodAllergyFacebookYouTube and Pinterest.

Food Allergy Research & Education Partners with AAAAI to Attract Gifted Investigators to the Field of Food Allergy
3/3/2014

At the 2014 Annual Meeting of the American Academy of Allergy, Asthma & Immunology (AAAAI) this weekend, AAAAI announced that Food Allergy Research & Education (FARE) has contributed $50,000 to help launch a fund that will provide a perpetual source of support for research in allergy, asthma and immunologic diseases. As the nation’s leading organization working on behalf of the 15 million Americans with food allergy, FARE is committed to partnering with AAAAI, a professional organization with more than 6,700 members worldwide, to attract the most talented investigators to the field.

FARE’s gift will help establish the Allergy, Asthma & Immunology Education and Research Organization, Inc.’s (ARTrust™) $4 million Donald Leung and JACI Editors Allergy/Immunology Research Fund. The ARTrust is a supporting organization to the AAAAI with a mission to find treatments and cures for the millions of people suffering from allergies, asthma and other immunologic diseases by supporting education and research.

The fund’s name recognizes the achievements of Dr. Donald Y. M. Leung, editor-in-chief The Journal of Allergy & Clinical Immunology (JACI), the most highly cited journal in the field. Dr. Leung is also a past chairman of FARE’s Research Advisory Board, the expert panel that reviews applications for FARE research grants. Currently, the two leading contributors to the fund are FARE and Steve & Nancy Carell.

“As the world’s largest private source of funding for food allergy research, FARE is proud to join with AAAAI to advance quality, cutting-edge research worthy of publication in JACI,” said John L. Lehr, chief executive officer of FARE. “With federal funding constrained, we cannot afford to lose the tremendous momentum we have gained in understanding food allergy and developing life-saving new treatments. That is why one of the most important goals of FARE’s strategic plan for food allergy research is to ensure that the best and the brightest investigators – from promising young fellows to brilliant minds from other disciplines – enter and remain in the field.”

FARE also hosted a reception for food allergy investigators at this year’s AAAAI Annual Meeting. Researchers at all stages of their careers learned about the organization’s research grant program and its strategic plan, “A Vision and Plan for Food Allergy Research,” which aims to create a deep scientific understanding of the disease and to develop safe, practical therapies that will protect individuals with food allergies from life-threatening reactions.

FARE and AAAAI have routinely partnered on key initiatives to advance the field of food allergy. In 2013, President Obama signed into law the federal School Access to Emergency Epinephrine Act, which was championed by FARE and endorsed by AAAAI. In addition, since 2008, FARE has funded the AAAAI/Food Allergy Research & Education Howard J. Gittis Memorial Fellowship/Instructor Research Awards, which aim to shape the next generation of food allergy investigators. The recipient of the 2014 Gittis Award, who will be selected by an AAAAI committee, will be announced within the coming weeks.

Details about the Donald Leung and JACI Editors Allergy/Immunology Research Fund are available at www.aaaai.org/global/ARTrust/leung-fund.aspx.

For more information about FARE’s strategic plan and research grants, visit www.foodallergy.org/research.

ABOUT FARE
Food Allergy Research & Education (FARE) works on behalf of the 15 million Americans with food allergies, including all those at risk for life-threatening anaphylaxis. This potentially deadly disease affects 1 in every 13 children in the U.S. – or roughly two in every classroom. Formed in 2012 as a result of a merger between the Food Allergy & Anaphylaxis Network and the Food Allergy Initiative, FARE’s mission is to find a cure for food allergies, and to keep individuals safe and included.  We do this by investing in world-class research that advances treatment and understanding of the disease, providing evidence-based education and resources, undertaking advocacy at all levels of government and increasing awareness of food allergy as a serious public health issue.  For more information, please visit www.foodallergy.org and find us on Twitter @FoodAllergyFacebookYouTube and Pinterest.

Food Allergy Research & Education Releases “Your Food Allergy Field Guide” to Connect Newly Diagnosed Families with Critical Resources
2/4/2014

Guide Helps Families Get Educated and Live Well with Food Allergies

McLean, Va. (Feb. 4, 2014) – Learning that you or your child has a food allergy – a life-altering and potentially life-threatening disease -- can be overwhelming. That’s why Food Allergy Research & Education (FARE) has created a new resource, “Your Food Allergy Field Guide,” designed to equip individuals and families who are receiving a new diagnosis with the knowledge needed to help them stay safe, avoid reactions, shop smartly and live well with food allergies.

FARE is distributing printed copies of the Field Guide through allergists’ offices across the United States. Already, orders for more than 65,000 copies of the Field Guide have been processed, with more expected in the future. FARE has been promoting the guide to members of the American College of Allergy, Asthma and Immunology and the American Academy for Allergy, Asthma and Immunology, the leading professional organizations for allergists in the United States. Today, FARE is releasing a free online version of the Field Guide, which is available for download at www.foodallergy.org/field-guide

“Every day we hear from parents seeking help in making sense of this daunting diagnosis – how will they manage? How will they keep their child safe?” said John L. Lehr, chief executive officer of FARE. “Our new Food Allergy Field Guide was developed with these families in mind, bringing together the best resources we have produced over the years and combining them into an easy-to-use guide that will serve them in the years ahead.”

Food allergies are on a dramatic rise in the United States. According to the Centers for Disease Control and Prevention, the number of children with food allergies grew by 50 percent between 1997 and 2011. With more and more individuals and families receiving a food allergy diagnosis, there is a critical need for evidence-based, up-to-date food allergy management strategies and tools.

“FARE's Food Allergy Field Guide provides the basic necessities that will immediately empower caregivers or individuals to successfully avoid exposure to an allergen and be prepared to save a life should a reaction occur,” said Kelly Morgan, president of Washington FEAST, a food allergy support group in Washington state. “Diagnosed individuals or parents are often given a prescription for epinephrine and little more, and without the proper education, the response can be denial and confusion, or paralyzing fear. By compiling the basic facts about food allergies and anaphylaxis, this Field Guide will ease this transition to a new lifestyle and ultimately save lives.”

Your Food Allergy Field Guide was developed under the guidance of FARE’s Education Working Group, a multidisciplinary committee that includes world-renowned allergists, parents of children with food allergies, support group leaders, a psychologist, a school nurse, a dietitian and two adults with food allergies. 

“When someone is diagnosed with a food allergy, there is a lot of information to take in – everything from how to avoid the allergen to how to use an epinephrine auto-injector, and we have limited time with our patients,” said Carla Davis, M.D., a pediatric allergist and immunologist at Texas Children’s Hospital and member of FARE’s Medical Advisory Board. “FARE’s field guide is an essential home resource for individuals and families that will help them navigate life with food allergies.”

Production of Your Food Allergy Field Guide was made possible by a generous grant from Mylan Specialty L.P. To download a free copy of the Field Guide, visit www.foodallergy.org/field-guide.

ABOUT FARE
Food Allergy Research & Education (FARE) works on behalf of the 15 million Americans with food allergies, including all those at risk for life-threatening anaphylaxis. This potentially deadly disease affects 1 in every 13 children in the U.S. – or roughly two in every classroom. Formed in 2012 as a result of a merger between the Food Allergy & Anaphylaxis Network and the Food Allergy Initiative, FARE’s mission is to find a cure for food allergies, and to keep individuals safe and included.  We do this by investing in world-class research that advances treatment and understanding of the disease, providing evidence-based education and resources, undertaking advocacy at all levels of government and increasing awareness of food allergy as a serious public health issue.  For more information, please visit www.foodallergy.org and find us on Twitter @FoodAllergyFacebookYouTube and Pinterest.

Food Allergy Research & Education Announces Partnership with MenuTrinfo on Allergen Training Program for Foodservices
1/27/2014

Food Allergy Research & Education (FARE) today announced a new partnership with MenuTrinfo®, a provider of nutritional analysis and allergen training, to offer the company’s AllerTrain™ program to foodservice operators and their teams.  As part of FARE’s ambitious new College Food Allergy Program, which aims to provide a safer college experience for students with food allergies, training for college and university foodservice staff will be a key goal of the partnership. 

FARE is the leading national organization working on behalf of the 15 million Americans with food allergy, a potentially life-threatening disease, The organization is committed to finding a cure for food allergies and helping individuals and families who are managing food allergies live safer, healthier lives. 

“Food allergy is a growing public health issue that affects millions of Americans, including 1 in 13 children. We are funding studies of promising treatments, but for now, the only way to stay safe is strict avoidance of problem foods,” said John L. Lehr, CEO of FARE. “FARE is proud to partner with MenuTrinfo to provide this comprehensive training program, which teaches chefs and foodservice employees how to provide safe meals to diners with food allergies. In addition to training for restaurant staff, the AllerTrain program offers specialized training for school and university foodservice operators, allowing children, teens and young adults to enjoy safe meals away from home.”

MenuTrinfo's AllerTrain service offers training in the classroom setting, as well as live webinars that are conducted by an instructor. The program teaches chefs and foodservice employees safe handling and delivery procedures of meals to diners with food allergies. Available training includes MenuTrinfo's AllerTrain U™, AllerTrain U™Condensed, and AllerTrain K12™ programs, which are designed for university and school foodservice staff, respectively. AllerTrain programs are eligible for American Culinary Federation continuing education credits and include a three-year certification that broadcasts to customers that foodservice establishments have the ability to safely meet unique dietary needs. 

“MenuTrinfo is excited to partner with FARE to improve food allergy education in the foodservice environment. For years, we have been dedicated to helping foodservice businesses provide safe meals to diners with food allergies and other dietary needs,” said Betsy Craig, CEO and co-founder of MenuTrinfo. “We believe that if you keep your customers safe and informed, they’ll come back for more. We strive to ensure that every business that participates in the AllerTrain program will become a model for effective food allergy management in its community.”  

In addition to teaming up with MenuTrinfo, FARE has partnered with the National Restaurant Association (NRA) to develop the NRA’s ServSafe Allergens Online Course.  FARE’s new SafeFARE program offers resources for individuals and families managing food allergies as well as restaurants to help create a safer dining experience and, ultimately, improve quality of life for those who are managing food allergies.

For more information about FARE’s partnerships for restaurant and food service training, visit www.foodallergy.org/training-restaurant-employees.

ABOUT FARE
Food Allergy Research & Education (FARE) works on behalf of the 15 million Americans with food allergies, including all those at risk for life-threatening anaphylaxis. This potentially deadly disease affects 1 in every 13 children in the U.S. – or roughly two in every classroom. Formed in 2012 as a result of a merger between the Food Allergy & Anaphylaxis Network and the Food Allergy Initiative, FARE’s mission is to ensure the safety and inclusion of individuals with food allergies while relentlessly seeking a cure. We do this by providing evidence-based education and resources, undertaking advocacy at all levels of government, increasing awareness of food allergy as a serious public health issue and investing in world-class research that advances treatment and understanding of food allergies.  For more information, please visit www.foodallergy.org and find us on Twitter @FoodAllergy, FacebookYouTube and Pinterest.

Food Allergy Research & Education Launches New National Program to Help Make College Campuses Safer for Students with Food Allergies
1/16/2014

Food Allergy Research & Education (FARE) is proud to announce the launch of an ambitious new program aimed at providing students with food allergies a safer college experience by helping colleges and universities develop uniform policies to effectively manage food allergy, a potentially life-threatening disease. 

The FARE College Food Allergy Program will address all aspects of college life with food allergies including dining services, resident life and social well-being, health services, disability accommodations and emergency services. FARE has partnered with several leading experts for the program, including the National Foundation for Celiac Awareness (NFCA), the National Association of College & University Food Services (NACUFS), food allergy experts, college and university representatives, and industry representatives. 

“Food allergy is a serious and growing public health issue, and colleges are beginning to realize the importance of ensuring their students with food allergies are safe and included in all aspects of campus life,” said John L. Lehr, chief executive officer of FARE. “We are proud to be working with NFCA, NACUFS and experts and colleges from around the country to develop comprehensive guidelines for managing food allergies in the college setting and resources to help schools implement these guidelines so they can better serve students managing this life-threatening disease.”

In 2014, the FARE College Food Allergy Program will focus on convening experts and stakeholders to create comprehensive guidelines and develop resources such as trainings for dining services and resident advisors, educational materials for existing and prospective students and their families, and guides for creating campus social groups. FARE will also be securing university partners to implement the recommendations as part of a pilot phase.“Working with FARE and NACUFS to address the needs of special diets students is a top priority that our organizations share,” said Beckee Moreland, Director of Gluten-Free Industry Initiatives for NFCA. “Together we are committed to ensuring that our children will be able to choose a college on the merits of the academic program instead of whether or not they will be safe in the dining hall.”

The Program kicks off today with its first College Summit, which is being held at Virginia Tech in Blacksburg, Va. and will focus on dining services. The summit is being held in conjunction with Premier, Inc., a healthcare performance improvement company that contracts for discounted food and foodservice products through its REACH™ program. Representatives from 30 colleges and universities, in addition to the Program’s partners and experts are expected to participate. Additional colleges and universities are expected to participate in future meetings. Schools with representatives at this first summit include:

  • California State University, Long Beach (Long Beach, Calif.)
  • Colorado State University (Fort Collins, Colo.)
  • Dartmouth College (Hanover, N.H.)
  • Davidson College (Davidson, N.C.)
  • Duke University (Durham, N.C.)
  • Ferrum College (Ferrum, Va.)
  • Georgia Southern University (Statesboro, Ga.)
  • Hendrix College (Conway, Ark.)
  • Lynchburg College (Lynchburg, Va.)
  • North Carolina State University (Raleigh, N.C.)
  • Princeton University (Princeton, N.J.)
  • San Diego State University (San Diego, Calif.)
  • Shepherd University (Shepherdstown, W.Va.)
  • Stanford University (Stanford, Calif.)
  • University of Akron (Akron, Ohio)
  • University of Colorado Boulder (Boulder, Colo.)
  • University of Colorado at Colorado Springs (Colorado Springs, Colo.)
  • University of Illinois at Urbana-Champaign (Champaign, Ill.)
  • University of Kansas (Lawrence, Kan.)
  • University of Maryland (College Park, Md.)
  • University of Michigan (Ann Arbor, Mich.)
  • University of Missouri (Columbia, Mo.)
  • University of Northern Colorado (Greeley, Colo.)
  • University of Richmond (Richmond, Va.)
  • Valparaiso University (Valparaiso, Ind.)
  • Virginia Polytechnic Institute and State University (Blacksburg, Va.)
  • Washington and Lee University (Lexington, Va.)
  • Williams College (Williamstown, Mass.)
  • Yale University (New Haven, Conn.)

According to the Centers for Disease Control and Prevention, between 1997 and 2011, the number of children in the U.S. under age 18 with food allergies increased by 50 percent. This dramatic increase illustrates the need for widespread adoption of college food allergy management policies. 
For more information about the FARE College Food Allergy Program, visit www.foodallergy.org/collegeprogram

ABOUT FARE
Food Allergy Research & Education (FARE) works on behalf of the 15 million Americans with food allergies, including all those at risk for life-threatening anaphylaxis. This potentially deadly disease affects 1 in every 13 children in the U.S. – or roughly two in every classroom. Formed in 2012 as a result of a merger between the Food Allergy & Anaphylaxis Network and the Food Allergy Initiative, FARE’s mission is to ensure the safety and inclusion of individuals with food allergies while relentlessly seeking a cure. We do this by providing evidence-based education and resources, undertaking advocacy at all levels of government, increasing awareness of food allergy as a serious public health issue and investing in world-class research that advances treatment and understanding of food allergies.  For more information, please visit www.foodallergy.org and find us on Twitter @FoodAllergy, FacebookYouTube and Pinterest.

ABOUT NFCA
The National Foundation for Celiac Awareness (NFCA) is a 501(c)(3) nonprofit organization that drives diagnoses of celiac disease and other gluten-related disorders and improves quality of life for those on a lifelong gluten-free diet. NFCA owns and operates GREAT Kitchens TM, a web-based gluten-free training program for foodservice professionals. Learn more at www.CeliacCentral.org/GREAT.

Food Allergy Research & Education Announces Partnership with ResearchMatch To Help Connect Patients with Food Allergy Research Studies
12/19/2013

New Partnership Will Help Accelerate Discoveries in Food Allergy Treatment
 
McLean, Va. (Dec. 19, 2013) – Food Allergy Research & Education (FARE) today announced a new partnership with ResearchMatch, a national online patient registry maintained by Vanderbilt University, to connect patients with food allergies to new clinical studies across the country. As the leading organization working on behalf of the 15 million Americans with food allergy, FARE is committed to advancing promising therapies that will reduce the risk of life-threatening food allergy reactions. 

Clinical trials are an essential part of understanding whether treatments under investigation can be effective, and successful completion of these trials is required in order to make promising therapies available to patients. A significant barrier to the completion of clinical trials is the lack of timely patient participation and restrictions that are placed on patient recruitment. 

ResearchMatch (www.researchmatch.org), a free and secure registry funded by the National Center for Research Resources, part of the National Institutes of Health, was created to help streamline patient recruitment and successfully enroll trials. FARE and ResearchMatch have teamed up to create a special sub-registry for patients with food allergies that will help investigators at institutions across the country more quickly identify candidates for participation in food allergy clinical trials. Signing up as a volunteer on ResearchMatch is simple and free, and does not place individuals or families under any obligation to participate.

“Food allergy is a potentially life-threatening disease and a growing public health issue. As we work to support the development of treatments that will save lives, it is critical that clinical trials studying treatments for food allergy move forward as quickly as possible,” said John L. Lehr, CEO of FARE. “We are pleased to be partnering with ResearchMatch to offer a new, easier way for families and researchers to connect about clinical trials, which ultimately will allow us to make effective treatments available sooner to the broader food allergy community.” 

Members of FARE’s Medical Advisory Board were involved in developing the sub-registry on food allergy. FARE-funded researchers and others will use the sub-registry to recruit patients as new studies become approved. 
“As a researcher and a member of FARE’s Medical Advisory Board, I was excited by the opportunity to help create the ResearchMatch food allergy sub-registry,” said Scott H. Sicherer, M.D., Professor of Pediatrics and a researcher in the Jaffe Food Allergy Institute at the Icahn School of Medicine at Mount Sinai, New York, NY. “This is an urgently needed tool, since the next few years will bring a great increase in the number of food allergy studies. Families and researchers alike can participate with confidence, knowing that they have found an authoritative, secure online resource for clinical trial recruitment.”

Once their studies are approved, researchers can search the database for possible matches, using data that does not include volunteers’ personal information. Potential volunteers receive an initial email through ResearchMatch and can choose whether to be contacted by the recruiter so they can learn more.  

“Getting the right individuals at the right times into the right studies is one of the most difficult pieces of the research puzzle. One of the challenges in conducting research in the field of food allergy is difficulty in connecting affected individuals with researchers,” said Kathy Edson, ResearchMatch Program Manager. “The food allergy sub-registry will enhance the precision and prescreening process for matching volunteers and research teams. The ResearchMatch team is looking forward to continued partnerships with FARE, researchers, volunteers, and stakeholders as we work together to make a difference in today’s patient-centered research.” 

Launched in 2009, ResearchMatch is the first nationwide, disease-neutral research volunteer registry. More than 43,000 volunteers spread among all 50 states have registered with ResearchMatch.org. Nearly 1,800 researchers from 84 participating academic institutions are currently recruiting ResearchMatch volunteers for more than 350 studies.

For more information and to sign up for the ResearchMatch food allergy sub-registry, visit www.researchmatch.org.
For more information about food allergies and food allergy research, visit www.foodallergy.org.  

ABOUT FARE
Food Allergy Research & Education (FARE) works on behalf of the 15 million Americans with food allergies, including all those at risk for life-threatening anaphylaxis. This potentially deadly disease affects 1 in every 13 children in the U.S. – or roughly two in every classroom. Formed in 2012 as a result of a merger between the Food Allergy & Anaphylaxis Network and the Food Allergy Initiative, FARE’s mission is to ensure the safety and inclusion of individuals with food allergies while relentlessly seeking a cure. We do this by providing evidence-based education and resources, undertaking advocacy at all levels of government, increasing awareness of food allergy as a serious public health issue and investing in world-class research that advances treatment and understanding of food allergies.  For more information, please visit www.foodallergy.org and find us on Twitter @FoodAllergy, FacebookYouTube and Pinterest.

 

Food Allergy Research & Education Unveils Comprehensive Strategic Plan for Research
11/25/2013

Nation’s leading food allergy organization aims to advance scientific understanding and accelerate development of treatments to prevent life-threatening reactions

McLean, Va. (Nov. 25, 2013) – Food Allergy Research & Education (FARE), the nation’s leading organization working on behalf of the 15 million Americans with food allergies, today unveiled its comprehensive strategic plan for food allergy research. The plan, entitled “A Vision and Plan for Food Allergy Research,” sets forth FARE’s strategy for building a deep scientific understanding of the disease and accelerating the development of safe, practical therapies that would shield individuals with food allergies from life-threatening reactions. FARE is the world’s largest private source of funding for food allergy research.

In the U.S., food allergies affect 1 in 13 children– roughly two in every classroom – and a food allergy reaction sends someone to the emergency room every three minutes. Currently, there is no cure and there are no preventive treatments to protect against life-threatening reactions. Strict avoidance of problem foods, and the use of emergency medication when a reaction occurs, are the only ways to prevent and treat anaphylaxis, a potentially fatal reaction. A recent report from the Centers for Disease Control and Prevention showed that the number of children with food allergies has increased by 50 percent since the late 1990s.

“Food allergy is a growing public health issue. For millions of children and adults, the smallest amount of a problem food can mean the difference between life and death. Researchers are studying promising treatments, but it will take significant, ongoing investments to find effective therapies and make them available to the public,” said John L. Lehr, CEO of FARE. “Working with leading experts from around the world, FARE has developed a strategic plan for food allergy research that will expand the number of highly qualified centers conducting clinical research, increase the number of clinical trials underway, and facilitate the collaboration between research centers needed to expedite studies.”

In April 2013, FARE brought together more than 50 leading researchers, senior government officials, industry representatives and food allergy advocates at a Research Retreat in Washington, DC. The discussions at this retreat formed the basis for the organization’s three-pillar research strategy, outlined in “A Vision and Plan for Food Allergy Research.” These pillars are:

* Develop a strategy and infrastructure to test clinical hypotheses in humans and rapidly advance clinical research.  FARE will create a national coordinating center for research, known as the FARE Research Organization (FARO), which will develop standardized clinical trial protocols; certify a national network of highly qualified food allergy centers – the FARE Clinical Research Network – to conduct these studies, collect and share data, and provide patient care; and promote the rapid recruitment of patients.
 
* Develop the scientific understanding, tools, and resources necessary to facilitate research that will build a pipeline of new therapies.  Unlike many other diseases, the underlying causes of food allergy – and the reasons for its rapid rise over the past 25 years – are unknown. Basic science aimed at answering fundamental questions is key to developing effective treatments. In addition, it is crucial that researchers have the tools they need to succeed, including an online food allergy research portal and a patient registry and biorepository that capture critical data, including clinical histories and biospecimens (serum, DNA, and RNA samples).

* Attract outstanding investigators to the field of food allergy and develop their careers.  FARE will provide seed funding, career development grants, and awards that promote exploration of new solutions, motivate young investigators, and encourage preeminent researchers from other disciplines to apply their talents to food allergy.

“Food allergy research has reached a pivotal stage,” said A. Wesley Burks, MD, chair of FARE’s Research Advisory Board and professor of medicine at the University of North Carolina School of Medicine, Chapel Hill. “Researchers are answering crucial questions and developing new treatments that have the potential to change patients’ lives. FARE’s ambitious plan will build on this strong foundation, uniting the scientific community and providing the structure, tools and resources we need to solve the problem of food allergy.”  

To begin implementing the plan, FARE will be seeking financial support from the philanthropic community and interested donors.

To read “A Vision and Plan for Food Allergy Research” and learn more about FARE’s research vision, visit www.foodallergy.org/research/strategic-plan.

ABOUT FARE
Food Allergy Research & Education (FARE) works on behalf of the 15 million Americans with food allergies, including all those at risk for life-threatening anaphylaxis. This potentially deadly disease affects 1 in every 13 children in the U.S. – or roughly two in every classroom. Formed in 2012 as a result of a merger between the Food Allergy & Anaphylaxis Network and the Food Allergy Initiative, FARE’s mission is to ensure the safety and inclusion of individuals with food allergies while relentlessly seeking a cure. We do this by providing evidence-based education and resources, undertaking advocacy at all levels of government, increasing awareness of food allergy as a serious public health issue and investing in world-class research that advances treatment and understanding of food allergies.  For more information, please visit www.foodallergy.org and find us on Twitter @FoodAllergy, FacebookYouTube and Pinterest.

 

President Obama Signs School Access to Emergency Epinephrine Act
11/13/2013

Legislation Championed by Food Allergy Research & Education Encourages Schools to Stock Lifesaving Medicine

McLean, Va. (Nov. 13, 2013) – President Obama today signed into law the School Access to Emergency Epinephrine Act during a ceremony attended by Food Allergy Research & Education (FARE) CEO John L. Lehr, members of FARE’s board of directors and key congressional sponsors. This historic and potentially lifesaving legislation is the first federal law encouraging schools to stock epinephrine for use in allergic emergencies, and has been championed by FARE for more than two years.

"I want to thank all the outstanding legislators who are  here, and advocates. This is something that will save children's lives," said President Barack Obama during the signing ceremony. The President also mentioned that his daughter, Malia, has a peanut allergy.

The law, passed by the Senate on Oct. 31 and by the U.S. House of Representatives on July 30, encourages states to require schools to keep lifesaving epinephrine on hand and ensure school personnel are trained to use it. The bill received strong bipartisan support and was passed by unanimous consent in both chambers.

“We are thrilled to see this legislation signed by President Obama and thank him for bringing national attention to the need to protect students with food allergies,” said John L. Lehr, CEO of FARE, who was joined at the bill signing ceremony by Rob Nichols and Amie Rappoport McKenna, members of FARE's Board of  Directors. “It is our hope that this legislation serves as the catalyst for states to recognize the need to not just allow schools to stock epinephrine, but to require this important medication be available to our students and empower school personnel to save lives.”

FARE has championed this legislation since 2011, bringing the daughter of country music star Trace Adkins to Capitol Hill to meet with members of Congress in support of the bill. Brianna Adkins, who visited Capitol Hill with her mother Rhonda, has multiple food allergies and is credited by one of the bill’s original co-sponsors, Rep. Phil Roe, M.D., (R-Tenn), with being one of the “best lobbyists” he has talked to in Washington, D.C.

In spring of 2012, FARE brought parent advocates to Capitol Hill to inform legislators about the critical need for this legislation. Among the parent advocates who attended was Laura Pendleton, whose daughter Amarria died just months earlier of an anaphylactic reaction at her elementary school. The bill was re-introduced this session in the House by Roe and Democratic Whip Steny Hoyer (Md.), and in the Senate by Sens. Richard Durbin (D-Ill.) and Mark Kirk (R-Ill.)

The School Access to Emergency Epinephrine Act incentivizes states to adopt laws requiring schools to have stock epinephrine auto-injectors by giving these states preference in eligibility for federal asthma education grants. Thirty states now have laws or guidelines in place allowing schools to stock undesignated epinephrine auto-injectors, but only four states (Maryland, Nebraska, Nevada and Virginia) currently require it.

In addition to FARE, the American Academy of Allergy, Asthma & Immunology, the American Academy of Pediatrics, the American Academy of Emergency Medicine and the National Association of Elementary School Principals endorsed the School Access to Emergency Epinephrine Act.

ABOUT FARE
Food Allergy Research & Education (FARE) works on behalf of the 15 million Americans with food allergies, including all those at risk for life-threatening anaphylaxis. This potentially deadly disease affects 1 in every 13 children in the U.S. – or roughly two in every classroom. Formed in 2012 as a result of a merger between the Food Allergy & Anaphylaxis Network and the Food Allergy Initiative, FARE’s mission is to ensure the safety and inclusion of individuals with food allergies while relentlessly seeking a cure. We do this by providing evidence-based education and resources, undertaking advocacy at all levels of government, increasing awareness of food allergy as a serious public health issue and investing in world-class research that advances treatment and understanding of food allergies.  For more information, please visit www.foodallergy.org.

U.S. Senate Passes School Access to Emergency Epinephrine Act
10/31/2013

Potentially Life-Saving Legislation One Step Closer to Becoming Federal Law

FOR IMMEDIATE RELEASE

McLean, Va. (Oct. 31, 2013) -  In a historic achievement for the food allergy community, the U.S. Senate today passed the School Access to Emergency Epinephrine Act (H.R. 2094), important legislation championed by Food Allergy Research & Education (FARE) that will help protect students with food allergies.

The bill, introduced by Senators Dick Durbin (D-IL) and Mark Kirk (R-IL), encourages states to adopt laws requiring schools to have on hand “stock” epinephrine auto-injectors, which is epinephrine that is not prescribed to a specific student but can be used for any student or staff member in an anaphylactic emergency. Anaphylaxis is a severe allergic reaction that is rapid in onset and can be fatal.

FARE has been working tirelessly toward the passage of this critical legislation for the last two years. The food allergy community, including FARE, has overwhelmingly supported this and similar state legislation across the country to give schools access to this life saving medication.  Since the introduction of the federal bill on May 22 in the House of Representatives by Reps. Phil Roe (R-TN) and Steny Hoyer (D-MD), FARE has been working closely with the bill sponsors, meeting with legislators on Capitol Hill to build support, soliciting endorsements from other organizations and issuing action alerts to advocates across the country. These efforts helped assure passage in the House on July 30 and generated 37 cosponsors in the Senate in less than two months. 

“We celebrate this milestone together with the many families who have answered the call to write to their elected representatives to urge support of this critical legislation, and we thank the Senate for recognizing that schools must be prepared to protect students with life-threatening food allergies.,” said John L. Lehr, chief executive officer of FARE. “This could not have been done without the leadership of Sens. Durbin and Kirk and U.S. Reps. Roe and Hoyer. We look forward to seeing President Obama sign it into law, and to encouraging greater safety in our schools.”

More than half of states have laws or guidelines in place allowing schools to stock undesignated epinephrine auto-injectors. The federal legislation would provide an incentive for states to require schools to stock epinephrine. Currently only four states - Maryland, Nebraska, Nevada and Virginia – require their schools to stock epinephrine.

In addition to FARE, the American Academy of Allergy, Asthma & Immunology, the American Academy of Emergency Medicine, the American Academy of Pediatrics and the National Association of Elementary School Principals endorsed the School Access to Emergency Epinephrine Act.

ABOUT FARE
Food Allergy Research & Education (FARE) works on behalf of the 15 million Americans with food allergies, including all those at risk for life-threatening anaphylaxis. This potentially deadly disease affects 1 in every 13 children in the U.S. – or roughly two in every classroom. Formed in 2012 as a result of a merger between the Food Allergy & Anaphylaxis Network and the Food Allergy Initiative, FARE’s mission is to ensure the safety and inclusion of individuals with food allergies while relentlessly seeking a cure. We do this by providing evidence-based education and resources, undertaking advocacy at all levels of government, increasing awareness of food allergy as a serious public health issue and investing in world-class research that advances treatment and understanding of food allergies.  For more information, please visit www.foodallergy.org and find us on Twitter @FoodAllergy, Facebook, YouTube and Pinterest.


Centers for Disease Control & Prevention (CDC) Publishes New National School Food Allergy Guidelines
10/30/2013

McLean, Va. (Oct. 30, 2013) – The Centers for Disease Control & Prevention (CDC) published new school food allergy guidelines on Wednesday that seek to protect the physical and emotional health of students with food allergies by providing practical information and strategies for schools while reinforcing federal laws and regulations. Food Allergy Research & Education (FARE) collaborated along with other groups on the development of the guidelines, the first document of its kind. 

The “Voluntary Guidelines for Managing Food Allergies in Schools and Early Care and Education Programs,” are intended to support the implementation of school food allergy management policies in schools and early childhood programs, and guide improvements to existing practices. 

“We strive to ensure that students with food allergies are both safe and included at school,” said John L. Lehr, chief executive officer of FARE. “We strongly encourage schools to adopt these new guidelines, or to examine their existing plans to make improvements in line with the CDC’s new recommendations. The guidelines will greatly improve the way we care for students with food allergies by having uniform procedures in place.” 

Implementing these guidelines may help schools reduce allergic reactions, improve response to life-threatening reactions and ensure current policies are in line with laws that protect children with serious health issues. Among the new guidelines’ recommendations:

  • avoiding the use of identified food allergens in class projects, parties, holidays and celebrations, arts, crafts, science experiments, cooking, snacks or rewards;
  • training transportation staff on how to respond to food allergy emergencies;
  • having rapid access to epinephrine auto-injectors in case of anaphylaxis, and training staff on how to use an epinephrine auto-injector;
  • ensuring that children with food allergies are not excluded from field trips, events or extracurricular activities, as well as physical education or recess activities;
  • using nonfood incentives for prizes, gifts and awards; and
  • designating allergen-safe zones, such as an individual classroom or eating area in the cafeteria, or designating food-free zones, such as a library, classroom, or buses.

“These guidelines assist schools and early care centers in shifting their policies and practices from response to prevention and preparedness, making these settings safer for children with food allergies.” said CDC Division of Population Health Director Wayne Giles, M.D., M.S.  “CDC greatly appreciates the collaborative process that engaged multiple federal agencies and national non-government organizations in the development of these guidelines.” 

These guidelines are critical to protect the nearly 6 million children in the U.S. with food allergies. More than 15 percent of children with food allergies have had a reaction at school, and approximately 25 percent of epinephrine administrations in the school setting involved an individual whose allergy was previously undiagnosed. 

As the guidelines state, “Some children with food allergies face health challenges that can affect their ability to learn and their social and emotional development – and even pose a daily threat to their ability to live productive lives. These guidelines call for strong partnerships among families, medical providers, and staff in schools and early care and education programs to help children overcome the challenges that come from having a food allergy. These guidelines also call for strong leadership in schools and early care and education programs, comprehensive plans for protecting children with food allergies, and effective responses to food allergy emergencies.”

The guidelines were created as the result of the Food Allergy and Anaphylaxis Management Act (included under the FDA’s Food Safety Modernization Act), which was championed by FARE and signed into law on Jan. 4, 2011. The law required the U.S. Secretary of Health and Human Services to develop and make available to schools a voluntary policy to manage the risk of food allergy and anaphylaxis in schools. FARE, the National Association of School Nurses and other groups collaborated with the CDC on the development of these guidelines. 

The guidelines may be downloaded at www.foodallergy.org/cdc.

ABOUT FARE
Food Allergy Research & Education (FARE) works on behalf of the 15 million Americans with food allergies, including all those at risk for life-threatening anaphylaxis. This potentially deadly disease affects 1 in every 13 children in the U.S. – or roughly two in every classroom. Formed in 2012 as a result of a merger between the Food Allergy & Anaphylaxis Network and the Food Allergy Initiative, FARE’s mission is to ensure the safety and inclusion of individuals with food allergies while relentlessly seeking a cure. We do this by providing evidence-based education and resources, undertaking advocacy at all levels of government, increasing awareness of food allergy as a serious public health issue and investing in world-class research that advances treatment and understanding of food allergies. For more information, please visit www.foodallergy.org and find us on Twitter @FoodAllergyFacebookYouTube and Pinterest.

Food Allergy Research & Education (FARE) Welcomes Two New Members to Medical Advisory Board
10/8/2013

McLean, Va. (Oct. 8, 2013) – Food Allergy Research & Education (FARE) is pleased to announce the election of Seema Aceves, M.D., Ph.D., and Carla Davis, M.D., to its Medical Advisory Board, which comprises some of the nation’s leading experts in the field of food allergy. 

FARE’s 13-member Medical Advisory Board plays an invaluable role in advising the organization on food allergy education initiatives, as well as providing medical review of FARE’s publications and web content. 

“We are fortunate to have leading allergists from all over the country on our Medical Advisory Board, and we are pleased to welcome Drs. Aceves and Davis to the group,” said John L. Lehr, chief executive officer of FARE. “Their knowledge and experience will be terrific additions to the Board and to FARE’s efforts as we work to serve the food allergy community.”

Aceves completed her degrees as part of the National Institutes of Health-funded Medical Scientist Training at University of California, San Diego (UC San Diego) after conducting research with Nobel laureate Edward B. Lewis at the California Institute of Technology. She is an associate professor of pediatrics in the Division of Allergy-Immunology-Rheumatology at UC San Diego School of Medicine and directs the Eosinophilic Gastrointestinal Disorders Clinic at Rady Children’s Hospital – San Diego. 

“It is an honor to serve on the Medical Advisory Board for FARE,” Aceves said. “The mission of bringing awareness to and supporting research in the field of food allergy is of significant importance and I am pleased to be able to assist the organization in its efforts.”

Davis is a specialist in the Immunology, Allergy and Rheumatology Section of the Department of Pediatrics at Baylor College of Medicine. She established a clinic dedicated to the treatment of food allergy and eosinophilic gastrointestinal disorders at Texas Children’s Hospital, and has published in the area of allergy and immunodeficiency with a focus in underlying immune mechanism of disease in several peer-reviewed medical journals. 

“I’m honored to become part of this esteemed Medical Advisory Board and look forward to working with FARE as it continues to develop educational initiatives in light of the increased prevalence of food allergies in the U.S.,” Davis said. 

For a list of FARE’s Medical Advisory Board members, please visit www.foodallergy.org/about/leadership/advisors

ABOUT FARE
Food Allergy Research & Education (FARE) works on behalf of the 15 million Americans with food allergies, including all those at risk for life-threatening anaphylaxis. This potentially deadly disease affects 1 in every 13 children in the U.S. – or roughly two in every classroom. Formed in 2012 as a result of a merger between the Food Allergy & Anaphylaxis Network and the Food Allergy Initiative, FARE’s mission is to ensure the safety and inclusion of individuals with food allergies while relentlessly seeking a cure. We do this by providing evidence-based education and resources, undertaking advocacy at all levels of government, increasing awareness of food allergy as a serious public health issue and investing in world-class research that advances treatment and understanding of food allergies.  For more information, please visit www.foodallergy.org and find us on Twitter @FoodAllergyFacebookYouTube and Pinterest.

New Study Finds Food Allergies Cost Billions of Dollars Each Year
9/17/2013

Chicago: A national study published in JAMA Pediatricsshows the financial impact of caring for children with food allergies costs families billions of dollars each year.

Headed by Ruchi Gupta, MD, MPH, an Associate Professor of Pediatrics at Northwestern University Feinberg School of Medicine and a physician at Ann & Robert H. Lurie Children’s Hospital of Chicago, the study focused on the economic impact of childhood food allergies in the United States (U.S.). Eight percent of children in the U.S. – about 1 in 13 children – have food allergies, which costs an estimated $24.8 billion annually ($4,184 per year per child). Direct medical costs – those expenses that consist of doctor’s visits, emergency department visits, and hospitalizations – account for an estimated $4.3 billion alone.

Having a child with food allergy increases the yearly cost of raising a child by about 30 percent. According to the USDA’s “Expenditures on Children by Families” report, for the year 2012, annual child-rearing expenses per child for a middle-income, two-parent family ranged from $12,600 to $14,700, depending on the age of the child. With the added costs identified in the new JAMA Pediatrics study, these numbers would climb to a range of $16,784 to $18,884.

“This is the first study of its kind to take a look not only at the medical costs of caring for a child with food allergy, but also at the costs to the families,” said Gupta. ”The majority of the costs, over $20 billion, were out-of-pocket expenses including the costs of caretakers, special safe schools and camps, special foods and lost opportunities like parental job changes.”

“A food allergy diagnosis is life-altering. In addition to the significant medical, emotional, and social impacts, these findings show that the financial costs associated with caring for a child with food allergies are another challenge families are facing,” said John L. Lehr, CEO of Food Allergy Research & Education (FARE), which provided funding for the study. “With more and more people being diagnosed with food allergy each year, we are likely to see these costs continue to rise. Raising awareness, educating the public, and investing in research to find a cure for this potentially life-threatening disease are imperative.”

For the study, parents completed a survey where they answered questions regarding spending habits, regularity of medical treatment, and their estimated willingness to pay for treatment. The largest cost to families is the loss of a job or the reduction in working hours due to the need to care for a child with food allergies.

“The stress of eating at an uncontrolled location, like school, makes parents nervous because an accidental ingestion can happen at any time,” said Gupta. “As nearly 40 percent of these children have already experienced a severe or life-threatening reaction, some parents have made the difficult decision to leave a job in order to ensure safer environments and more closely monitor their child.”

Research showed many families were unwilling to take a job that required leaving their child unsupervised for long periods of time and preferred to look for employment that would provide ready access to their child in case of an accidental exposure.

Other members of the research team include David Holdford, RPh, PhD, Lucy Bilaver, PhD, Ashley Dyer, MPH, Jane L. Holl, MD, MPH, and David Meltzer, MD, PhD.

Lurie Children’s is one of the top children’s hospitals in the country according to U.S. News & World Report.It is the pediatric training ground for Northwestern University Feinberg School of Medicine and one of only a handful of U.S. children’s hospitals with a dedicated pediatric research center. It was the first children’s hospital in the country to receive the American Nurses Credentialing Center’s Magnet Award for Nursing Excellence. 

FARE works on behalf of the 15 million Americans with food allergies, including all those at risk for life-threatening anaphylaxis. FARE’s mission is to ensure the safety and inclusion of individuals with food allergies while relentlessly seeking a cure. FARE provides evidence-based education and resources, undertaking advocacy at all levels of government, increasing awareness of food allergy as a serious public health issue and investing in world-class research that advances treatment and understanding of food allergies. For more information, please visit www.foodallergy.org.

U.S. Senators Richard Durbin and Mark Kirk Introduce School Access to Emergency Epinephrine Act
9/12/2013

McLean, Va. (Sept. 12, 2013) – Today, the School Access to Emergency Epinephrine Act, which would encourage states to require that schools keep lifesaving epinephrine on hand, was introduced in the U.S. Senate by Sens. Richard Durbin (D-Ill.) and Mark Kirk (R-Ill.) and co-sponsored by 20 other senators. Food Allergy Research & Education (FARE) has been working toward passage of this legislation for the last two years in its efforts to ensure that the first-line treatment for anaphylaxis is readily available to all students.

The introduction of the bill in the Senate brings this potentially lifesaving legislation one step closer to passage. The companion bill, sponsored by Rep. Phil Roe, M.D. (R-Tenn.) and House Democratic Whip Steny Hoyer (Md.) already was approved by the U.S. House of Representatives on July 30.
The School Access to Emergency Epinephrine Act encourages states to adopt laws requiring schools to have “stock” epinephrine auto-injectors, which is epinephrine that is not prescribed to a specific student but can be used for any student or staff member in an anaphylactic emergency. Anaphylaxis is a severe allergic reaction that is rapid in onset and can be fatal.

“We would like to thank Sens. Durbin and Kirk for their strong support of this legislation, and we encourage their fellow senators to show their own support by co-sponsoring the bill,” said John L. Lehr, chief executive officer of FARE. “We hope that one day, every school in the nation is stocked with epinephrine. We know that epinephrine saves lives, and that allergic reactions can occur at any time and without warning. We look forward to approval of this legislation in the Senate so that it can be signed into law by the President.”

“For the 50 million young people across the country, the public school they attend every day is a place to learn, to make new friends, and to be exposed to new things. For a small number of these children – about 1 in every 13 – school lunchtime or a classmate’s school birthday party can risk exposure to foods that can cause a severe and life-threatening reaction. In some cases, the consequences of exposure to the wrong food can be fatal. But more often than not, the worst case is preventable,” Senator Durbin said. “Schools can be prepared for these situations by having epinephrine on hand, and trained staff to administer it in the few minutes they have to save the life of a child experiencing a severe allergic reaction. This bill encourages states to take these precautions, and I will work with Senator Kirk and my Senate colleagues to ensure that we’re taking every appropriate step to protect kids in their schools.” 

"Millions of kids across the U.S. are at risk from potential allergic attacks while at school," Senator Kirk said. "When children are exposed to a severe allergen, swift and safe administration of epinephrine can be life-saving. Our bill provides qualified, trained staff the ability to prevent an allergy-related fatality by administering an epinephrine injection immediately. I will continue to work with Senator Durbin and my colleagues to ensure our children stay safe in school." Thirty states now have laws or guidelines in place allowing schools to stock undesignated epinephrine auto-injectors, with four states currently requiring it. The proposed federal legislation would provide an incentive for states to require schools to stock epinephrine. 

In addition to FARE, the American Academy of Allergy, Asthma & Immunology, the American Academy of Pediatrics, the American Academy of Emergency Medicine and the National Association of Elementary School Principals have endorsed the School Access to Emergency Epinephrine Act.

ABOUT FARE
Food Allergy Research & Education (FARE) works on behalf of the 15 million Americans with food allergies, including all those at risk for life-threatening anaphylaxis. This potentially deadly disease affects 1 in every 13 children in the U.S. – or roughly two in every classroom. Formed in 2012 as a result of a merger between the Food Allergy & Anaphylaxis Network and the Food Allergy Initiative, FARE’s mission is to ensure the safety and inclusion of individuals with food allergies while relentlessly seeking a cure. We do this by providing evidence-based education and resources, undertaking advocacy at all levels of government, increasing awareness of food allergy as a serious public health issue and investing in world-class research that advances treatment and understanding of food allergies. For more information, please visit www.foodallergy.org and find us on Twitter @FoodAllergyFacebookYouTubeand Pinterest.

Discovery Channel’s “An Emerging Epidemic: Food Allergies in America” Examines Challenges of Living with Food Allergies and New Hope for a Cure
9/3/2013

McLean, Va. (Sept. 3, 2013) – Food Allergy Research & Education (FARE) is proud to announce the premiere of the Discovery Channel’s new medical documentary, “An Emerging Epidemic: Food Allergies in America,” which seeks to raise awareness of food allergies as a serious and growing public health issue by telling the stories of families living with this potentially life-threatening disease. The program was supported by an educational grant from FARE and Mylan Specialty L.P.

Up to 15 million people in the U.S. have a food allergy, and a new report from the Centers for Disease Control and Prevention shows that the number of children with food allergies has grown by more than 50 percent since the late 1990s. The hour-long documentary, narrated by Steve Carell, explores the science of food allergy, what it is like to live with the disease, and the state of food allergy research, including the status of various treatments under study.

The documentary will premiere Sept. 7 at 8 a.m. ET/PT and encore on Sept. 21 at 8 a.m. ET/PT. Check local listings for details.

“We are proud to partner with the Discovery Channel to produce this important documentary that tells the story of millions of Americans who are managing food allergies and anaphylaxis every day, and details the progress being made to develop therapies that can help prevent life-threatening reactions,” said John L. Lehr, chief executive officer of FARE. “Our hope is that this program will increase awareness of food allergy as a serious and growing public health issue, and educate viewers about the potentially life-threatening nature of the disease.”

Filmmakers traveled across the country to profile individuals and families who are managing food allergies to illustrate the daily challenges they face and the solutions they employ to address those challenges. Some of the nation’s leading food allergy experts are interviewed in the documentary, including Drs. Hugh Sampson of Mount Sinai School of Medicine, Kari Nadeau of Stanford University, Ruchi Gupta of Northwestern University and Hemant Sharma of Children’s National Medical Center.

The documentary will be available for viewing at www.discoverychannelpatienteducation.com and available for download on iTunes. The documentary and additional teacher and classroom materials will be made available through Discovery Education, the country’s largest provider of multimedia educational content for the classroom.

To help amplify awareness of food allergies, FARE is encouraging supporters to host viewing parties of the documentary across the country. More information is available at www.foodallergy.org/emerging-epidemic.

ABOUT FARE
Food Allergy Research & Education (FARE) works on behalf of the 15 million Americans with food allergies, including all those at risk for life-threatening anaphylaxis. This potentially deadly disease affects 1 in every 13 children in the U.S. – or roughly two in every classroom. Formed in 2012 as a result of a merger between the Food Allergy & Anaphylaxis Network and the Food Allergy Initiative, FARE’s mission is to ensure the safety and inclusion of individuals with food allergies while relentlessly seeking a cure. We do this by providing evidence-based education and resources, undertaking advocacy at all levels of government, increasing awareness of food allergy as a serious public health issue and investing in world-class research that advances treatment and understanding of food allergies.For more information, please visit www.foodallergy.org and find us on Twitter @FoodAllergy, Facebook YouTube and Pinterest.

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Food Allergy Research & Education (FARE) Walk for Food Allergy Supports the 15 Million Americans with Food Allergies
8/21/2013

McLean, Va. (Aug. 21, 2013) – In communities nationwide, the Food Allergy Research & Education (FARE) Walk for Food Allergy, presented by Mylan, is bringing together thousands of Americans to raise critical funds and awareness for life-threatening food allergies. This national program raises funds to create educational resources, advance advocacy priorities, invest in world-class research to find a cure and raise awareness of food allergies as a serious and growing public health issue. FARE is the nation’s leading organization dedicated to food allergies.

With more than 60 walks in 2013, the FARE Walk for Food Allergy unites all those who are seeking a safe and inclusive world for people with food allergies. This potentially life-threatening disease affects up to 15 million Americans, including 1 in 13 children – roughly two in every classroom.

The FARE Walk for Food Allergy has raised $16 million since its inception in 2004. These funds enable FARE to develop much needed educational materials, such as emergency care plans, trainings and webinars; lead efforts to expand the availability of emergency epinephrine in schools; and invest in research that seeks to advance treatment to prevent life-threatening allergic reactions. 

“A food allergy reaction sends someone to the emergency room every three minutes.  Sadly, children with food allergies know that one bite of the wrong food could have dangerous consequences, including anaphylaxis, a potentially deadly reaction. But it does not have to be that way. We are making great progress in developing life-saving treatments and programs,” said John L. Lehr, chief executive officer of FARE. “Thanks to our generous sponsors and dedicated supporters, the day will come when we say FAREwell to food allergies.”

More than 50 walks are scheduled throughout the country in the next three months. Each walk is a unique family-friendly event that presents a great opportunity to take part in an important cause while changing the face of this life-altering and life-threatening disease. 

“Mylan is thrilled to be the presenting sponsor of the FARE Walk for Food Allergy events for the seventh consecutive year,” said Roger D. Graham, Jr., president of Mylan Specialty. “As the prevalence of food allergies continues to rise, partnering with a leading organization like FARE to support these educational events is a critical part of our ongoing efforts to raise awareness of and preparedness for anaphylaxis, a life-threatening allergic reaction.”  

Mylan is the presenting sponsor of the FARE Walk for Food Allergy.
Additional national sponsors include:  Sanofi (Elite Sponsor); So Delicious Dairy Free and SunButter (Platinum Sponsors); Enjoy Life, Thermo Fisher ImmunoCAP Peanut Component Testing and Van’s Natural Foods (Silver Sponsors); and TOYOTA, Abbott, and Allergic Living (Bronze Sponsors).
 
To find a walk, register or donate, visit www.foodallergywalk.org. 

ABOUT FARE

Food Allergy Research & Education (FARE) works on behalf of the 15 million Americans with food allergies, including all those at risk for life-threatening anaphylaxis. This potentially deadly disease affects 1 in every 13 children in the U.S. – or roughly two in every classroom. Formed in 2012 as a result of a merger between the Food Allergy & Anaphylaxis Network and the Food Allergy Initiative, FARE’s mission is to ensure the safety and inclusion of individuals with food allergies while relentlessly seeking a cure. We do this by providing evidence-based education and resources, undertaking advocacy at all levels of government, increasing awareness of food allergy as a serious public health issue and investing in world-class research that advances treatment and understanding of food allergies.  For more information, please visit www.foodallergy.org and find us on Twitter @FoodAllergy, Facebook, YouTube and Pinterest.

U.S. House of Representatives Passes School Access to Emergency Epinephrine Act
7/30/2013

Legislation Could Save Lives in Schools Nationwide

McLean, Va. (July 30, 2013) – The U.S. House of Representatives voted Tuesday to approve the School Access to Emergency Epinephrine Act (H.R. 2094), important legislation championed by Food Allergy  Research & Education (FARE) that will help protect students with food allergies.

The bill, introduced by Rep. Phil Roe, M.D. (R-TN) and House Democratic Whip Steny Hoyer (MD), encourages states to adopt laws requiring schools to have on hand “stock” epinephrine auto-injectors, which is epinephrine that is not prescribed to a specific student but can be used for any student or staff member in an anaphylactic emergency. Anaphylaxis is a severe allergic reaction that is rapid in onset and can be fatal.

“We applaud the House for recognizing the need for schools to be prepared to protect students with life-threatening food allergies by passing this legislation, and we thank Dr. Roe and Rep. Hoyer for their unequivocal support,” said John L. Lehr, chief executive officer of FARE. “This is a tremendous victory, but we still have work to do to enact this legislation. We look forward to working with our champions in the Senate, Sen. Richard Durbin (D-IL) and Sen. Mark Kirk (R-IL), so that this legislation can be approved and sent to the President for signature.” 

About half of states have laws or guidelines in place allowing schools to stock undesignated epinephrine auto-injectors. The proposed federal legislation would provide an incentive for states to require schools to stock epinephrine. 

In addition to FARE, the American Academy of Allergy, Asthma & Immunology, the American Academy of Emergency Medicine and the National Association of Elementary School Principals have endorsed the School Access to Emergency Epinephrine Act.

ABOUT FARE

Food Allergy Research & Education (FARE) works on behalf of the 15 million Americans with food allergies, including all those at risk for life-threatening anaphylaxis. This potentially deadly disease affects 1 in every 13 children in the U.S. – or roughly two in every classroom. Formed in 2012 as a result of a merger between the Food Allergy & Anaphylaxis Network and the Food Allergy Initiative, FARE’s mission is to ensure the safety and inclusion of individuals with food allergies while relentlessly seeking a cure. We do this by providing evidence-based education and resources, undertaking advocacy at all levels of government, increasing awareness of food allergy as a serious public health issue and investing in world-class research that advances treatment and understanding of food allergies.  For more information, please visit www.foodallergy.org and find us on Twitter@FoodAllergy, Facebook, YouTube and Pinterest.

National Restaurant Association Partners with Food Allergy Research & Education on New Allergen Awareness Program
7/30/2013

Chicago (July 30, 2013) - The National Restaurant Association today announced the launch of ServSafe Allergens Online Course, a new online training course from the creators of the highly regarded ServSafe food safety program designed to help restaurants address food allergens. The education tool was developed in partnership with Food Allergy Research & Education (FARE), the nation’s leading food allergy nonprofit organization. 

"The National Restaurant Association has been working diligently over the years to responsibly address the issue of food safety in restaurants, including food allergens," said William Weichelt, Director of ServSafe for the National Restaurant Association. "We are excited to partner with FARE on ServSafe Allergens to educate our restaurants and their employees, helping our members accommodate their guests' food allergies or other dietary requirements."

Weichelt added, "As always, we strongly encourage guests to talk to restaurant staff about their food allergies, and discuss concerns and alternatives to make their dining experience safe and enjoyable."

“Food allergies are a potentially life-threatening disease affecting up to 15 million Americans,” said John L. Lehr, CEO of FARE. “We are proud to partner with the National Restaurant Association to launch this critical training program that will help restaurant personnel better understand the needs and safety precautions required when serving guests with food allergies. Ultimately, this program will help ensure a safer, more enjoyable dining experience for individuals and families who are managing food allergies.”

The ServSafe Allergens course is designed to help both front-of-the-house staff and back-of-the-house operations better understand how to accommodate the growing number of guests with food allergies. 

The course is part of the Association’s ServSafe Program of comprehensive education materials created to develop a strong, skilled industry workforce. Through the ServSafe Food Safety program, the National Restaurant Association is the leading source of food safety training and certification for restaurant and foodservice industry professionals for nearly 40 years. To date, more than 5 million ServSafe certifications have been issued.  

Visit FoodAllergens.com to learn more about the program, and watch a video overview. For resources on dining out with food allergies, visit FARE’s website at www.foodallergy.org.

ABOUT FARE
Food Allergy Research & Education (FARE) works on behalf of the 15 million Americans with food allergies, including all those at risk for life-threatening anaphylaxis. This potentially deadly disease affects 1 in every 13 children in the U.S. – or roughly two in every classroom. Formed in 2012 as a result of a merger between the Food Allergy & Anaphylaxis Network and the Food Allergy Initiative, FARE’s mission is to ensure the safety and inclusion of individuals with food allergies while relentlessly seeking a cure. We do this by providing evidence-based education and resources, undertaking advocacy at all levels of government, increasing awareness of food allergy as a serious public health issue and investing in world-class research that advances treatment and understanding of food allergies.  For more information, please visit www.foodallergy.org.


ABOUT THE NATIONAL RESTAURANT ASSOCIATION

Founded in 1919, the National Restaurant Association is the leading business association for the restaurant industry, which comprises 980,000 restaurant and foodservice outlets and a workforce of more than 13 million employees. We represent the industry in Washington, D.C., and advocate on its behalf. We operate the industry's largest trade show (NRA Show May 17-20, 2014, in Chicago); leading food safety training and certification program (ServSafe); unique career-building high school program (the NRAEF's ProStart); as well as the Kids LiveWell program promoting healthful kids' menu options. For more information, visit Restaurant.org and find us on Twitter @WeRRestaurants, Facebook and YouTube.

Food Allergy Research & Education (FARE) Partners with MedicAlert Foundation on Vital Program That Can Help Save Lives
6/17/2013

“MyVoice” Program Communicates Critical Medical Information in Emergency Situations

McLean, Va. (June 17, 2013) -- For those faced with life-threatening anaphylaxis, communicating the severity of a medical emergency quickly is critical. Food Allergy Research & Education (FARE) and the MedicAlert Foundation are pleased to announce their partnership and the “MyVoice” program, designed to help protect individuals with food allergies with life-saving services.

In an anaphylactic emergency, a MyVoice MedicAlert membership ensures emergency responders and hospital staff receive your child’s or your own medical information within moments. MedicAlert identification products could save a life in the event that a reaction has progressed to the point that an individual becomes incapacitated and cannot communicate. Using medical identification products is recommended in the food allergy clinical guidelines developed by an expert panel sponsored by the National Institute of Allergy and Infectious Diseases.

“The MedicAlert Foundation has been a longtime supporter of our organization. We believe this partnership has tremendous benefits to our members and the food allergy community – it is about keeping our loved ones with food allergies safe,” said John L. Lehr, chief executive officer of FARE. “Emergency responders are trained to look for MedicAlert identification products when treating patients in emergency situations, and we follow the lead of the national clinical guidelines in recommending that every individual with a food allergy wear these potentially life-saving accessories.”

For children with food allergies, a MedicAlert ID can also serve as a signal that will remind those caring for them to avoid serving the child’s food allergen.

“Our partnership with FARE is critical to furthering our shared mission of protecting people during times of need,” said Andrew B. Wigglesworth, president & CEO of MedicAlert Foundation. “For over 50 years, MedicAlert Foundation has been providing vital health information on behalf of our members in all types of emergencies. Through this partnership, our objective is to help ensure individuals with food allergies receive quick and effective treatment in an emergency and that first responders have the necessary information to provide quality care.”

The MedicAlert Foundation stores an individual’s medical information and links it to his or her personalized medical ID. Additionally, a MyVoice MedicAlert membership provides family notification service in the event of an emergency, 24 hours a day. The MyVoice program provides a 10 percent discount on MedicAlert memberships for both adults and children. The Kid Smart and adult memberships through FARE come with a free basic medical ID, or a $10 credit toward an upgraded medical ID product.

The MedicAlert Foundation will donate 20 percent of proceeds from these MyVoice memberships to FARE to help support food allergy education, advocacy, awareness and research programs.

For more information, please visit www.medicalert.org/fare.


ABOUT FARE
Food Allergy Research & Education (FARE) works on behalf of the 15 million Americans with food allergies, including all those at risk for life-threatening anaphylaxis. This potentially deadly disease affects 1 in every 13 children in the U.S. – or roughly two in every classroom. Formed in 2012 as a result of a merger between the Food Allergy & Anaphylaxis Network and the Food Allergy Initiative, FARE’s mission is to ensure the safety and inclusion of individuals with food allergies while relentlessly seeking a cure. We do this by providing evidence-based education and resources, undertaking advocacy at all levels of government, increasing awareness of food allergy as a serious public health issue and investing in world-class research that advances treatment and understanding of food allergies.  For more information, please visit www.foodallergy.org

ABOUT MEDICALERT FOUNDATION
Established in 1956, the nonprofit MedicAlert Foundation pioneered the use of medical IDs and delivers the most dependable, responsive, and trusted Emergency Identification and Medical Information Network. MedicAlert provides the functionality of an e-health information exchange through an innovative combination of a unique patient identifier linked to a personal health record and a live 24/7 U.S.-based emergency response service. MedicAlert Foundation International medical IDs alert emergency personnel to a member’s primary health conditions, medications or implanted medical devices. In addition to its 24-hour emergency response service, MedicAlert Foundation International also provides family and caregiver notification so that members can be reunited with their loved ones. For more information on MedicAlert Foundation, please visit: www.medicalert.org.


Food Allergy Research & Education (FARE) Champions Federal Legislation Encouraging Schools to Stock and Administer Epinephrine
5/23/2013

McLean, Va. (May 23, 2013)  -- Rep. Phil Roe, M.D. (R-TN) and House Democratic Whip Steny Hoyer (MD) yesterday reintroduced the School Access to Emergency Epinephrine Act (H.R. 2094), legislation championed by Food Allergy Research & Education (FARE). This bill encourages states to adopt laws requiring schools to have on hand “stock” epinephrine auto-injectors, which is epinephrine that is not prescribed to a specific student but can be used for any student or staff member in an anaphylactic emergency. Anaphylaxis is a severe allergic reaction that is rapid in onset and can be fatal.

In addition to protecting those whose epinephrine auto-injector is not immediately accessible during a reaction, this legislation will help save the lives of those who experience an anaphylactic reaction and do not have a prescribed epinephrine auto-injector. Studies estimate that up to 25 percent of all epinephrine administrations that occur in the school setting involve individuals whose risk for allergy was unknown at the time of the event. In 2012, the National School Boards Association issued new food allergy guidelines recommending that schools stock epinephrine.

More than 20 states have laws or guidelines in place allowing schools to stock undesignated epinephrine auto-injectors. The proposed federal legislation would provide an incentive for states to require schools to stock epinephrine.

“No child should die of an anaphylactic reaction because life-saving epinephrine is unavailable,” said John L. Lehr, chief executive officer of FARE. “This bill will help make millions of school children with food allergies safer. We are grateful to Dr. Roe and Mr. Hoyer for their leadership on this common sense legislation.”

The bipartisan bill was originally introduced in the 112th Congress in 2011. Sens. Durbin and Kirk introduced the bill in the Senate, while Reps. Roe and Hoyer introduced it in the House.

As a physician, Rep. Roe has seen the life-saving effects of epinephrine firsthand. He once saved the life of a landscaper working in his yard who had an anaphylactic reaction to an insect sting.

“I am proud to introduce the School Access to Emergency Epinephrine Act because this important legislation could save lives,” he said. “According to the American Academy of Allergy, Asthma & Immunology, roughly one in 13 children under age 18 have at least one food allergy. A systemic allergic reaction can kill within minutes. To prevent a fatal outcome, we need to make epinephrine auto-injectors available in our schools. You can never be too careful when protecting the life of a child and this legislation will ensure we’re taking every precaution we can to ensure children are safe should they have an allergic reaction at school. I want to thank Rep. Steny Hoyer for his support of and work on this bill.”

“For the nearly 6 million children in our country who suffer from food allergies, including my granddaughter, it’s vital that our schools have immediate access to emergency epinephrine in the event of an allergic reaction,” said Democratic Whip Hoyer. “That’s why I re-introduced legislation to encourage states to have epinephrine auto-injectors on hand in schools and to ensure that school personnel are trained to quickly respond to an emergency allergic reaction. I will work to enact this legislation so we may provide peace of mind to families across the country. I thank Food Allergy Research & Education for their endorsement of this bipartisan legislation and for their advocacy for life-saving measures at both the national and state levels.”

In addition to FARE, the American Academy of Allergy, Asthma & Immunology and the American Academy of Emergency Medicine have endorsed the School Access to Emergency Epinephrine Act.

ABOUT FARE
Food Allergy Research & Education (FARE) works on behalf of the 15 million Americans with food allergies, including all those at risk for life-threatening anaphylaxis. This potentially deadly disease affects 1 in every 13 children in the U.S. – or roughly two in every classroom. Formed in 2012 as a result of a merger between the Food Allergy & Anaphylaxis Network and the Food Allergy Initiative, FARE’s mission is to ensure the safety and inclusion of individuals with food allergies while relentlessly seeking a cure. We do this by providing evidence-based education and resources, undertaking advocacy at all levels of government, increasing awareness of food allergy as a serious public health issue and investing in world-class research that advances treatment and understanding of food allergies.  For more information, please visit www.foodallergy.org


Food Allergy Research & Education (FARE) Takes Action to Address Growing Problem of Food Allergy Bullying
5/13/2013

New Public Service Campaign “It’s Not A Joke” Tackles Difficult and Often Overlooked Issue during Food Allergy Awareness Week

McLEAN, VA (May 13, 2013) – Food Allergy Research & Education (FARE), the nation’s leading food allergy organization, released today a national educational program targeted at curbing food allergy bullying among children in the United States. One in 13 children in the U.S. – roughly two in every classroom – has a food allergy. Nearly 40 percent of children with food allergies have experienced a severe or life-threatening reaction, such as anaphylaxis, and approximately one-third of children with food allergies report that they have been bullied because of their allergies. Nearly half the time, children with food allergies do not tell their parents that they have been bullied.

“Bullying has a significant social and emotional impact on children with food allergies,” said John L. Lehr, chief executive officer of FARE. “Research released earlier this year demonstrates it is important to identify and address cases of bullying proactively. The public service announcements released today mark an important step in educating and raising awareness of the physical dangers and emotional toll imposed by a new form of bullying in this country.”

A study published in Pediatrics (January 2013) demonstrated that bullying is common in children with food allergies. Researchers concluded that this bullying is associated with lower quality of life and distress in both children and their parents. According to the study, when parents are aware of the bullying, the child’s quality of life is better. 

“It is our hope that greater awareness of the serious and potentially life-threatening nature of food allergies will help children and parents understand that what can be seen as a prank actually is very harmful and potentially very dangerous,” Lehr said.

Teen actor and former Shake It Up star Kenton Duty volunteered his talents for the PSA voiceover, since Kenton has publicly shared his own story of living with food allergies. Child actors were used in the PSAs to bring to life the feelings and stories of children with food allergies who have been bullied in an effort to protect their privacy. The PSAs are available in 90 and 30 second versions on www.foodallergy.org. 

Food Allergy Awareness Week is being observed May 12-18 this year. More information, resources and awareness tools are available at www.foodallergy.org.

About FARE
Food Allergy Research & Education (FARE) works on behalf of the 15 million Americans who have food allergy, including all those at risk for life-threatening anaphylaxis. This potentially deadly disease affects 1 in every 13 children in the U.S. – or roughly two in every classroom. Formed in 2012 as a result of a merger between the Food Allergy & Anaphylaxis Network and the Food Allergy Initiative, FARE’s mission is to ensure the safety and inclusion of individuals with food allergies while relentlessly seeking a cure. We do this by funding world-class research that advances treatment and understanding of food allergies, providing evidence-based education and resources, undertaking advocacy at all levels of government and increasing awareness of food allergy as a potentially life-threatening and a growing public health issue. For more information, please visit www.foodallergy.org.

# # #

Reference:PEDIATRICS, Volume 131, Number 1, January 2013 “Child and Parental Reports of Bullying in a Consecutive Sample of Children with Food Allergy.” 10-17.

Extreme Athlete Strives for Rowing Record and Cure for Food Allergies
5/10/2013

MCLEAN, Va. (May 10, 2013) – On May 17, Mike Monroe, a renowned extreme athlete, will attempt to break a world rowing record in honor of his 8-year-old son Miles and the 15 million Americans with food allergies. Monroe, an former Marine who has been through some of the toughest training the military has to offer, will have 24 hours to set a new indoor rowing machine record for his age and weight – and to raise $50,000 for Food Allergy Research & Education (FARE), a national nonprofit organization dedicated to creating a safe and inclusive world for people with food allergies. 

Mike’s “Odyssey Against Food Allergies” begins at noon on Friday, May 17 at the Sport&Health Club in Old Town, Alexandria, and ends at noon on Saturday. The elite athlete has already raised more than a $350k for charities through extreme fitness competitions. Supporters can test their stamina by rowing at Mike’s side for a donation, or make a general donation to FARE. 

“I am doing this for my son, who crushes my soul every time he says he just wants to be a regular kid,” Monroe said. “I am fueled to reach my fundraising goal by my son and the other kids out there who suffer from food allergies.” 

Miles is one of 5.9 million children in the U.S. who have food allergies.  Nearly 40 percent of these children have already experienced a severe or life-threatening reaction, such as anaphylaxis.

“Studies have documented the dramatic rise in food allergies,” said John L. Lehr, chief executive officer of FARE. “But we are making progress in developing life-saving treatments and programs. Thanks to Mike and our generous supporters across the country, we will meet the challenge of making the world safe for people with food allergies.” 

Staff members at Sport&Health have been actively involved in planning Monroe’s event.

“Sport&Health is thrilled to host the ‘Odyssey Against Food Allergies’ endurance challenge and provide support to a great cause and a local community member,” said Teri Bothwell, corporate director of Group Fitness at Sport&Health. “This is a great opportunity to bring awareness to the need for food allergy research and education while also promoting fitness.”
 
To learn more, register for a rowing session with Monroe, or make a donation, visit Monroe’s “Odyssey Against Food Allergies” page online.
 

About FARE
Food Allergy Research & Education (FARE) works on behalf of the 15 million Americans with food allergies, including all those at risk for life-threatening anaphylaxis. This potentially deadly disease affects 1 in every 13 children in the U.S. – or roughly two in every classroom. Formed in 2012 as a result of a merger between the Food Allergy & Anaphylaxis Network and the Food Allergy Initiative, FARE’s mission is to ensure the safety and inclusion of individuals with food allergies while relentlessly seeking a cure. We do this by providing evidence-based education and resources, undertaking advocacy at all levels of government, increasing awareness of food allergy as a serious public health issue and funding world-class research that advances treatment and understanding of food allergies. For more information, please visit www.foodallergy.org.


Food Allergy Research & Education (FARE) Kicks Off the 2013 FARE Walk for Food Allergy Program in Cincinnati and Orlando
4/26/2013

McLEAN, VA (April 25, 2013) – Food Allergy Research & Education’s (FARE) Walk for Food Allergy, a national program that raises vital funds on behalf of the 15 million Americans with food allergies and heightens awareness of this potentially life-threatening disease, is set to kick off Saturday with walks in Cincinnati and Orlando – the first of more than 65 events planned across the country this year. 

With 1 in 13 children in the U.S. affected, food allergies are a serious public health issue that must be addressed in communities nationwide. FARE’s Walk for Food Allergy, presented by Mylan, has raised more than $14 million since its inception and is a family-friendly event that provides a sense of community among individuals and families affected by food allergies, including all those at risk for life-threatening anaphylaxis.

“There is a critical need for funding for food allergy education, advocacy and research,” said John L. Lehr, chief executive officer of FARE. “Working together with the food allergy community, FARE will continue to develop programs to help ensure the safety and inclusion of individuals with food allergies and work with leading investigators to fund world-class research that can reduce the risk of anaphylaxis and help save lives. We thank our dedicated walkers, volunteers and sponsors for their continued support that will enable us to one day say FAREwell to food allergies.”

This year, FARE opened five new regional offices throughout the country to grow its presence and expand fundraising and outreach efforts in order to meet a critical need. FARE increased the number of walks by nearly 50 percent over last year, from 45 to more than 65 nationwide, in order to meet the needs of a community that has seen its numbers grow over the last 20 years.  

Walkers need not have a food allergy to participate! Food allergies affect the entire community – parents, adults, educators, healthcare workers, corporate supporters, caregivers, and friends are encouraged to form a team to support this important cause.

While the majority of FARE’s Walk for Food Allergy events occur in the fall, there are several upcoming events in addition to the walks in Cincinnati and Orlando on April 27. Coinciding with National Asthma and Allergy Awareness Month, walks will be held on May 11 in Santa Barbara, Calif. and on May 18 in Boise.

To find a location, register or donate, visit www.foodallergywalk.org.

About FARE
Food Allergy Research & Education (FARE) works on behalf of the 15 million Americans with food allergies, including all those at risk for life-threatening anaphylaxis. This potentially deadly disease affects 1 in every 13 children in the U.S. – or roughly two in every classroom. Formed in 2012 as a result of a merger between the Food Allergy & Anaphylaxis Network and the Food Allergy Initiative, FARE’s mission is to ensure the safety and inclusion of individuals with food allergies while relentlessly seeking a cure. We do this by providing evidence-based education and resources, undertaking advocacy at all levels of government, increasing awareness of food allergy as a serious public health issue and funding world-class research that advances treatment and understanding of food allergies. For more information, please visit www.foodallergy.org.

Food Allergy Research & Education (FARE) Elects Mary Weiser and Maria Acebal to Board of Directors
3/19/2013

McLEAN, VA (March 19, 2013) – Food Allergy Research & Education (FARE) announced today that Mary Weiser, Advocate and Fundraising Chair of the University of Michigan’s Food Allergy Center, and Maria Acebal, former CEO of the Food Allergy & Anaphylaxis Network (FAAN), have been elected as the newest members of its Board of Directors.

“We are pleased to welcome Mary and Maria to FARE’s Board of Directors. Mary has been a passionate advocate, raising millions on behalf of food allergy families. And Maria, having led one of our legacy organizations, brings a wealth of food allergy education experience,” said Todd J. Slotkin, Chairman of FARE’s Board of Directors. “Both will play a vital role in helping guide FARE’s future. Together, we are committed to helping FARE carry out its vision of making the world safe for the food allergy community.”

Weiser has held a number of positions in the state and federal political arena. In addition to her political experience, Weiser has diverse fundraising experience within the corporate and nonprofit settings. She and her husband have two children, both with multiple food allergies. 

“Like many of my fellow board members, I know firsthand what it’s like to have your child experience an anaphylactic reaction,” Weiser said. “I look forward to working with the board and the team at FARE on a national level and helping to improve the lives of families affected by food allergies.”
Acebal created the highly respected Safe@School program, designed to train educators about how to keep students with food allergies safe. Prior to serving as FAAN’s CEO, Maria was a litigator in Washington D.C. and later worked at the global consulting firm McKinsey & Co. Maria and her husband have three children, including a daughter with a peanut allergy.

“I am honored to take this next step and become a member of FARE’s Board of Directors, continuing the work that is so vital to families like ours who live with the risk of anaphylaxis,” Acebal said.

FARE’s board is comprised almost entirely of food allergy parents and grandparents. Half of FARE’s board members were previously members of the FAAN board and half were previously on the board of the Food Allergy Initiative. All have been working for years to advance FARE’s mission of ensuring the safety and inclusion of all individuals with food allergies while relentlessly seeking a cure.

About FARE
Food Allergy Research & Education (FARE) works on behalf of the 15 million Americans with food allergies, including all those at risk for life-threatening anaphylaxis. This potentially deadly disease affects 1 in every 13 children in the U.S. – or roughly two in every classroom. Formed in 2012 as a result of a merger between the Food Allergy & Anaphylaxis Network and the Food Allergy Initiative, FARE’s mission is to ensure the safety and inclusion of individuals with food allergies while relentlessly seeking a cure. We do this by providing evidence-based education and resources, undertaking advocacy at all levels of government, increasing awareness of food allergy as a serious public health issue and funding world-class research that advances treatment and understanding of food allergies. For more information, please visit www.foodallergy.org

Food Allergy Research & Education (FARE) Debuts New Website
3/11/2013

New Site Features Easy-to-Use Navigation and Critical Resources for Food Allergy Management

McLEAN, VA (March 11, 2013) – Food Allergy Research & Education (FARE), the nation’s leading food allergy organization, is pleased to announce the launch of its new website, which provides knowledge and resources to help individuals and families who are managing food allergies stay safe and live well. The site also offers information designed to help institutions and organizations ensure the safety and inclusion of individuals with food allergies. FARE works on behalf of the 15 million Americans with food allergies, including all those at risk for life-threatening anaphylaxis.

FARE’s website, www.foodallergy.org, has been eagerly anticipated since the completion of the merger between the Food Allergy & Anaphylaxis Network (FAAN) and the Food Allergy Initiative (FAI), which was announced in November 2012. The new website combines the best content previously available from FAAN and FAI, including highly respected educational resources and advocacy materials, as well as information on clinical trials and advancements in research.

Visitors to the website will immediately notice a new, dynamic look and improved navigation designed to easily lead them to the information they seek. With special sections designed for a variety of audiences and targeted tips for managing food allergies in different situations, the site ensures FARE’s best resources are tailored to users and readily available. 

“We have made great strides in raising awareness about food allergies as a serious public health issue in recent years, but we know food allergies continue to be widely misunderstood,” said John L. Lehr, chief executive officer of FARE. “Having a comprehensive website with evidence-based information that helps educate people about food allergies is absolutely critical to our mission. The new www.foodallergy.org  will help us continue to advance food allergy education, advocacy, awareness and research on behalf of the food allergy community.”

Visitors to the website will find it easy to become a member of FARE online or to provide a donation to support the 15 million Americans with food allergies. Website visitors can also use the site to connect with FARE’s new regional offices, enabling individuals and families to learn more about advocating in their communities and supporting food allergy education and research programs by participating in regional events. 

Additional features on the new site include personal stories, content for kids and teens, and resource pages designed specifically for individual audiences such as the newly diagnosed, parents, college students, adults with food allergies, schools, camps, colleges, restaurants and more, allowing them quick and direct access to the information they need. FARE will be updating the site with new content throughout the year.

About FARE
Food Allergy Research & Education (FARE) works on behalf of the 15 million Americans who have food allergy, including all those at risk for life-threatening anaphylaxis. This potentially deadly disease affects 1 in every 13 children in the U.S. – or roughly two in every classroom. Formed in 2012 as a result of a merger between the Food Allergy & Anaphylaxis Network and the Food Allergy Initiative, FARE’s mission is to ensure the safety and inclusion of individuals with food allergies while relentlessly seeking a cure. We do this by funding world-class research that advances treatment and understanding of food allergies, providing evidence-based education and resources, undertaking advocacy at all levels of government and increasing awareness of food allergy as a potentially life-threatening and a growing public health issue. For more information, please visit www.foodallergy.org.

 

FARE-Funded Researcher Featured in New York Times Article
3/9/2013

FARE-funded researcher Dr. Kari Nadeau is featured in a New York Times Magazine article - "The Allergy Buster."The piece is the magazine’s cover story for Sunday, March 10, 2013. FARE is proud to support world-class food allergy research and clinical trials nationwide, including Dr. Nadeau's.

While oral immunotherapy, the treatment featured in the article, has shown encouraging results in clinical trials, it should not be performed outside the academic research setting.

Read the article



Leading Food Allergy Organizations Announce Completion of Merger and Introduce New Name
3/7/2013

Merger Between the Food Allergy & Anaphylaxis Network and the Food Allergy Initiative Finalized

FAIRFAX, VA and NEW YORK (Nov. 12, 2012) – The Food Allergy & Anaphylaxis Network (FAAN) and the Food Allergy Initiative (FAI) today announced the completion of their merger, marking a tremendous milestone for the food allergy community. The new organization, known as FARE, will be dedicated to food allergy research and education with the mission of ensuring the safety and inclusion of individuals with food allergies while relentlessly seeking a cure.
 
FARE combines FAAN’s expertise as the most trusted source of information, programs and resources related to food allergies with FAI’s leadership as the world’s largest private source of funding for food allergy research. The organizations first announced their intent to merge in May and recently received the final regulatory approvals.
 
Building on the significant accomplishments of FAAN and FAI over the past two decades, FARE will fund world-class research that advances treatment and understanding, provide evidence-based education and resources, undertake advocacy at all levels of government, and work to increase awareness of food allergies as a serious public health issue.
 
“FARE is committed to serving all those affected by food allergies through research, education, advocacy and awareness,” said John Lehr, CEO of FARE. “Food allergies are a serious and growing public health issue touching every aspect of our society, and it is critical for all of us – whether food-allergic or not – to know how to properly manage this potentially life-threatening condition.”
 
The merger comes at a crucial time in the national discourse around food allergies. This potentially life-threatening medical condition, which has no cure, affects as many as 15 million people in the U.S., including one in every 13 children – or roughly two in every classroom. With nearly 40 percent of these children already having experienced a severe or life-threatening food-allergic reaction, the need for a cure – and for increased education about the impact of this condition – is urgent.
 
Through the end of 2012, FAAN and FAI events, public communications and websites will continue with the existing organizations’ names. FARE will debut its new logo and website, which will be located at www.foodallergy.org, in early 2013.
 
The new organization will be headquartered in the Washington, D.C. metropolitan area. In addition to existing offices in New York and Chicago, FARE will have five regional offices covering the Northeast, Midwest, Southeast, Southwest and West to help expand fundraising and outreach activities.
 
Read our FAQ about the merger.
 
About FARE

 Founded in 2012 as a result of a merger between the Food Allergy & Anaphylaxis Network and the Food Allergy Initiative, FARE is a nonprofit organization dedicated to food allergy research and education with the mission of ensuring the safety and inclusion of individuals with food allergies while relentlessly seeking a cure. Food allergies are potentially life-threatening and affect as many as 15 million people in the United States, including 5.9 million children. FARE funds world-class research that advances treatment and understanding of food allergies, provides evidence-based education and resources, undertakes advocacy at all levels of government, and increases awareness of food allergies as a serious public health issue. For more information, please visit www.foodallergy.org.

Media Contact

 Nancy Gregory
 Media Relations
 703) 563-3066
 E-mail: ngregory@foodallergy.org

Father Urges Others to Stay Safe in Anaphylaxis Awareness Video Campaign
3/7/2013

New Video From the Food Allergy & Anaphylaxis Network Features Father of BJ Hom
 
FAIRFAX, Va. (Oct. 18, 2012) – More than four years after the death of his 18-year-old son, Brian Hom still vividly remembers the tragic details of his son’s last night alive, and has turned his grief into a crusade to educate others about the severity of food allergies. In a new video launched today by the Food Allergy & Anaphylaxis Network (FAAN), Hom recounts the night his son suffered a fatal anaphylactic reaction to peanuts.
 
“Burying a child is a parent’s worst nightmare,” Hom said. “I want people to know that food allergies are real, they are dangerous, and potentially fatal.”
 
In July 2008, the Hom family traveled to Mexico on vacation to celebrate BJ Hom’s 18th birthday and high school graduation. BJ, who was allergic to peanuts, reacted to a food he had eaten at the hotel’s restaurant. He was not carrying an epinephrine auto-injector.
 
In the video, Hom describes the series of events leading to BJ’s death and stresses the critical need to have a Food Allergy & Anaphylaxis Emergency Care Plan and carry a prescribed epinephrine auto-injector at all times. Epinephrine (adrenaline) is the first-line treatment for anaphylaxis, a serious allergic reaction that is rapid in onset and may cause death.
 
The video is the second FAAN video designed to raise awareness about the need for food-allergic individuals to be prepared for anaphylactic emergencies. The first video, aimed at teens and released last month, featured actor Kenton Duty, age 17, who is allergic to wheat and chocolate.
 
“Most food allergy fatalities occur because epinephrine was not readily accessible or there was a delay in the administration of this lifesaving medicine,” said FAAN CEO John Lehr. “Brian’s courage and his commitment to doing everything he can so that no other lives are lost due to food-allergic reactions is to be commended. We think his message will make a strong impact in the community and we are hopeful that the message of this video will be taken to heart.”  
 
The video may be viewed on FAAN’s YouTube page and by visiting www.foodallergy.org/staysafe/index.php.

About FARE

 Founded in 2012 as a result of a merger between the Food Allergy & Anaphylaxis Network and the Food Allergy Initiative, FARE is a nonprofit organization dedicated to food allergy research and education with the mission of ensuring the safety and inclusion of individuals with food allergies while relentlessly seeking a cure. Food allergies are potentially life-threatening and affect as many as 15 million people in the United States, including 5.9 million children. FARE funds world-class research that advances treatment and understanding of food allergies, provides evidence-based education and resources, undertakes advocacy at all levels of government, and increases awareness of food allergies as a serious public health issue. For more information, please visit www.foodallergy.org.

Media Contact

 Nancy Gregory
 Media Relations
 (703) 563-3066
 E-mail: ngregory@foodallergy.org

Food Allergy & Anaphylaxis Alliance Annual Meeting Unites Global Food Allergy Advocates
3/7/2013

Food Allergy & Anaphylaxis Network Hosts Annual Alliance Meeting 
 
FAIRFAX, Va. (Sept. 24, 2012) – The world’s leading food allergy advocates will convene this week for the 12th annual meeting of the Food Allergy & Anaphylaxis Alliance to discuss the growing, international food allergy epidemic and the measures needed to protect the millions who live with this potentially life-threatening medical condition.
 
Between 220 and 520 million people in the world may have a food allergy, according to the World Allergy Organization White Book on Allergy. The Alliance, founded in 1999 to facilitate the exchange of valuable information among like-minded organizations, meets annually and brings together not only food allergy advocates from various continents, but scientists and food industry leaders who are invested in keeping food-allergic individuals safe.
 
Representatives from 18 member organizations will attend the meeting at the Hyatt Fairfax at Fair Lakes from Sept. 24-26.
 
“With studies showing a marked increase in the prevalence of food allergy, this is a pivotal point in time for the food allergy community,” said John Lehr, CEO of the Food Allergy & Anaphylaxis Network, one of the founding member organizations of the Alliance. “We welcome our fellow food allergy advocates to this unique annual event for an invaluable opportunity to collaborate and learn from each other.”
 
Maria Said, president of Allergy and Anaphylaxis Australia, who has been a member of the Alliance since its inception, said sharing information and increasing awareness on management and emergency treatment is what helps save lives.
 
“Food allergy has no boundaries,” Said stated. “The worldwide increase in prevalence has left many nations grappling to manage what is a potentially life-threatening condition. The formation of the international alliance more than 12 years ago has allowed like-minded community support organizations worldwide to share information, knowledge, resources and expertise. This has afforded many countries the opportunity to learn from one another and even use other nations’ experiences to help improve management locally.”
 
Among the topics slated for this year’s meeting are allergen trends in food service and the continued use of precautionary statements in ingredient labels.
 
The first day of the Alliance meeting is dedicated to “Preventive Controls and Allergen Management in the Manufacturing Environment” and is co-sponsored by the Global Food Protection Institute (GFPI).
 
Featured speakers include Lehr; GFPI CEO Julia Bradsher; Steven Gendel, Ph.D., of the Food and Drug Administration; Steve Taylor, Ph.D., of the Food Allergy Research and Resource Program at the University of Nebraska-Lincoln; and Matthew Greenhawt, M.D., M.D.A., M.S.c., an assistant professor in the Division of Allergy and Immunology at the University of Michigan and research director for the University of Michigan Food Allergy Center.
 
Alliance members at the meeting include leaders from FAAN, Allergy New Zealand, Netherlands Anaphylaxis Network, Allergy & Anaphylaxis Australia, The Anaphylaxis Campaign (UK), Anaphylaxis Canada, German Allergy and Asthma Association, Israel Food Allergy Support Network, Food Allergy Italia, Food Allergy Partnership (Japan), Hong Kong Allergy Association, Growing Up with Allergies in Chile, French Association for Allergy Prevention, Prevention of Allergy (Belgium), Spanish Association of Food and Latex Allergy, and food allergy advocates from India, Argentina, and Mexico.

About FARE

 Founded in 2012 as a result of a merger between the Food Allergy & Anaphylaxis Network and the Food Allergy Initiative, FARE is a nonprofit organization dedicated to food allergy research and education with the mission of ensuring the safety and inclusion of individuals with food allergies while relentlessly seeking a cure. Food allergies are potentially life-threatening and affect as many as 15 million people in the United States, including 5.9 million children. FARE funds world-class research that advances treatment and understanding of food allergies, provides evidence-based education and resources, undertakes advocacy at all levels of government, and increases awareness of food allergies as a serious public health issue. For more information, please visit www.foodallergy.org.

Media Contact

 Nancy Gregory
 Media Relations
 (703) 563-3066
 E-mail: ngregory@foodallergy.org